Trying to cope

Thankyou so much it’s hard to know what support is out there for us as carers as we need the emotional support too!!

Thankyou ?

Very much the same, with dad after his stroke. Try and ask one someone to pop in during the day to give your dad some time out even if he goes for a walk. Xxx 

Likewise although it was my dad...learnt have to look after me!!! Like today I spent what I call my time after taking his dog Izzie for a walk ..... I treated myself to a smelly bath bomb bath. I have ptsd as well as anxiety due to work related incidents. So I have learnt to chill my mind these days...try the relaxing apps on your phone before bed.xx

Thanks I’ve tried the relaxing apps but I can’t concentrate on them. I’m waiting for CBT so hopefully that will help. It’s hard isn’t it and we forget to have time for us! I’ve two boys ages 5 and 10 so I’ve got them too to look after. 

You've certainly got your hands full - you must be exhausted, you need that sleep, you really deserve it.  Others on this site offer lots of suggestions with sleep, you'll find something that suits you and then you can start to re-gain your energy.

 

Take good care xx

Thanks yes I’m busy and my mum still has lots of hospital appointments for various things?! We had 2 this last week and one on Friday so it’s constant too 

Just one thing at a time - it's the only way I get through!!  Can't cope with everything at once, otherwise it feels like I'm sinking.  You will come through the other side, then look back and see how well you've done smiley

Learning to really chill is quite an art if you're used to being busy.  However, seeing my husband suffer this last year has really put things in perspective.  I've got an OFSTED inspection looming, normally I'd be so jittery and working like mad, but I'm thinking "it's just an inspection, I've been through worse!"  I feel a sense of empowerment actually, and would probably become quite argumentative if I was challenged about something!!   Our well-being is more important than anything else - enjoy your pampering baths laugh

It goes better. Be positive. It would be good if she went to a stroke club which makes her feel "not on her own". She speech will get better. laugh  I have had a stroke for 13yrs and my speech have got better. I walked with a stick. 

I went for my driving assessment. I passed but I couldn't read the number plate because I couldn't say it....... !!! I did some driving in the streets around the centre. Not a test. 

thats great news you passed well done smiley

Be Positive. Every day will bring success. Join a stroke club and don't be afraid of speaking to stroke survivors. yesheart

Well done!!!!! Might be a idea to carry some kind of stoke awareness card in case you get stopped by my colleagues for a road side eye test...maybe on the card indicate you will write in down for them just a thought x

Hi Susan, my partner / wife had her stroke 8 months ago, no speech at all-- I have no easy answers but try to think what your partner is feeling / frustratiion / anger etc. it is rough on us the partner but twice as difficult for them especially if they cant communicate

I to get tired and loose my patience at times and find myself apologising , they, the specialists,  say it will get better-I wait and hope--but love and hope are your best allies-dont give in--just give him a cuddle and try and put yourself in his possitionfrown

Hi Alan iv just read your post

its been 8 months since my partner had his stroke and I have to admit find it extremely hard to keep calm in some situations..I don’t like to say anything that might upset him or do something but it is hard,so it’s reassuring to hear that others also feel like this.. thank you 

Snap with the 8 months Sue my wife had her severe stroke 6th January I love her to bits but there are days, usually late afternoon when it all becomes to much--she is trying so hard to tell me something but I just cant figure it out--she gets upset--I get upset--tired and feel that I'm loosing it--usually apologise later when I calm down--not the usual me I was a senior Fire Officer and thought I could cope with about everything but age / time / patience all seem to contribute to the problem--friends neigbours etc all try but just dont understand

Good to briefly talk with someone who may

Bye Alan

hi Susan

I had my stroke just over a year ago, and I am fine one minute and frustrated and angry the next.  Stroke survivors find everything harder to cope with, my husband says I am so easy to pounce at the littlest of things.  They say you always take it out on the one you love!  I would love to say it gets easier but each stroke survivor is different.  Be patient and know that he doesnt mean it.

Wendy

Hi all I say is try to be positive and think you still have your partner many stroke victims do not survive.  I survived my stroke just over a year ago and it has taken that long for me to accept that it happened and that I am a different person now.  Get in touch with your local stroke association coordinator, who will help you through all that you are facing.  Help deal with paperwork, therapy, courses and much more.  You are not alone, we are all with you.

Wendy

Hi I think it would be a good idea for you to contact your local stroke association, who will give you lots of advice and practical help with everything.  If your husband was in work then he will be eligable for ESA and dependent upon his difficulties PIP.  Ring the DWP help line, it takes an age to get through but is worth it.  My husband rang and was able to deal with them for me.  I now have enough to cover the loss of my wage, it took eight months but it is backdated.  Take each day as it comes, explain to people once they know they do try to help.

Good luck
Wendy