Trying to cope

well done to him, thats really good news and will be a big boost for him 

Tony 

Thanks Tony, I've called in after work and he drove to the local restaurant today and treated mum. Only a 10min drive but clearly done them the world of good. Xx

That's fabulous news, it will make them both feel that they have re-gained some independence, and a return to things they enjoy doing.  You will always look on this moment, bank that feeling and use it if you're feeling down!!  So pleased smiley

Hi my mum had a stroke Mid March and was in hospital for over 3 months. It’s hard as life has changed since then. Her speech has been affected and that will be forever now. We are slowing adapting but it’s been hard for me i now have anxiety and panic attacks after dealing with it all! Sometimes I just want my mum back. ? still lots of hospital appointments to attend for various medical reasons now. One night changed everything. 

Hi everyone 

My partner had a stroke 7 weeks ago - he has no physical problems, however his personality is now Jekyll and Hyde and lately it has been more Hyde. I know it is the stroke and so does he afterwards but I'm struggling.  Is this a long term thing and if so can he get help for it ?

Thanks in advance 

Susan 

My dad had a stroke in April. He is now at home and he and mum are coping. He wakes up and gets up a lot during the night and is very confused. He has a carer each morning at 8 and often is opening the front door ready at 3 or 4 in the morning. My mum is so tired as she is not getting enough sleep. I live away and don’t know how to help. Anyone got any experience of this type of night time confusion? 

Thanks xx

Hi Nettie so sorry to hear about your mam 

it is very hard when something like this happens to someone who you love and it’s sad but natural to feel the way you do

my partner had a massive stroke in February and it’s really hard to accept how life has changed..but we do eventually 

you take care and I’m sure things will work out in the end, feel free to ask any questions you have there is always someone who can help you out 

My Mum had a second stroke recently, she can’t read or write and is struggling with her speech. She is becoming very frustrated and is getting very angry with my Dad, recently shouting and swearing at him in the supermarket. He’s nearly 80 and ust to her looking after him, seems strange but he didn’t know how to use the cash point, and there are so many other things that we just took for granted that she did for us all. I tell him to be calm and paitient with her, and that things will gradually get better, but i’m beginning to worry about his health now. Has anyone had a similar experience so I can help him to cope. Sadly I don’t live locally.

I have trouble speaking if you get claro speak app it will help your mother and father.

My husband had a stroke 14 years ago at the age of 52. He could not walk,talk or understand what was happening to him.After 3 months in rehab we returned to the "real world". Progress was slow but he now drives himself to the gym 3 times a week.He got  a degree at the age of 60.His speech is good and most people think his limp is just arthritis! He still has no feeling at all on the right side of his body. He uses his sight and hearing to gauge where his arm or leg is.He still has disfacia, which can make him introverted and can make him frustrated.His short term memory is terrible.Our life is not where I thought it would be at this stage in our marriage.It has completely changed. Not always in a bad way though. We have many understanding,good friends and a very good social life.Its very easy to become institutionalised and frightened of going out but once you do, you get a bit of normality back and life gets better.Its still not easy but it's a lot nicer than the alternative.

 

 

thank you for your reply

its good to hear positive news from someone who has has gone through what we’re going through now and to hear that it will get better for us eventually..

Hi Susan. Stroke is a major disruption to the individual. It frightens, angers and plays havoc with the emotions. When I first came home after my stroke, I gave my partner a hard time. Silly things made me angry, as did the inability to do things I once took for granted. I had to learn patience and did. My outbursts have eased with time but can still come out of the blue. Yesterday, I was taking an egg out of the fridge with my good hand, when it decided to take off and land on the floor. Outburst of angry swearing, then count to ten and clear up the mess. I try to keep outbursts to myself, so give him time. At least he knows the stroke is to blame.

Thanks it's just so hard at times.

The scariest thing for me when we left the rehab unit, was that I became his sole carer .Instead of having the health team around me ,I was alone , it's frightening, I am not a nurse.Luckily the unit adored my husband and whatever nagging fear I had , I could always call them for advice. I constantly worried that he may have another stroke. We were able to live very quietly,our children were older and lived away,we slept a lot and ate healthily. I don't remember anymore physio or speech therapy being offered once we got home, just the occasional follow up appointment with the stroke consultant at the main hospital. Walking was very hard and we sought out a specialist Physio ourselves. An avid reader, he couldn't read. Using his mobile phone was a nightmare, let alone his computer.Obviously forget driving.Im afraid to say that we just lived from day to day but gradually we had got through a week, then a month and then confidence that we could manage, slowly started to grow.Luckily the cocktail of drugs that he was now taking, had no side effects, he still takes the same ones.I know a lot of people have difficulty finding the right tablets for them and that can be a big problem.Its been a long time for us now, living with the stroke but I'm always happy to share and possibly help in any way I can. Our story has a positive outcome.

gary’s recovery has been slow...then it picked up a bit but suddenly it’s stopped again he seems so down lately.

i sometimes wonder is this it now...we seem so distant with each other and it’s not intentional I’m scared we’re drifting apart x

My dad was doing the same things 230am ready to take the poor dog for a walk!!!! ... he has since got better in terms of time management not great but realises when it's still night time at least 

Thankyou that’s it life has changed and it’s dealing with the changes and frustrations along the way. It’s hard isn’t it and since then I’ve have been diagnosed with anxiety and have panic attacks. 

Hi Nettie  -  you are not alone, it is very challenging to adapt to a life-changing event which you definitely haven't planned for.  All the emotions and frustrations have been experienced by others on this site so we know what you are going through, it can feel over-whelming.  You will find that you develop your own routines and strategies to deal with things, but the advice you will get from this site will really help you to make short cuts!  Remember that rest is very important (for both), and will be a major feature in recovery, maybe for months to come.

Try to contact the My Stroke team, as they will be able to suggest ways to help with the anxiety.  Know that people are thinking of you and sending good wishes.

hi nettie I know exactly how your feeling...if you ever need to talk or just want to vent your feelings then I’m here x