I often go to watch bands with my best mate who specialises in Mondegreens!
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Yup, I remember the Wurzels, but not the others and I was in the 60s part of which I was in the Army. Womenâs Royal Army Corps which no longer exists sadly, but always a hippie at heart 
Val
Your description of your experiences with the lights, sounds, movement, floor patterns, new place, and walking distances in all that chaos is spot on for me. I did not realize it had a name. I hope that has gotten better for you. It has not for me, but I hope it will. Hard to enjoy sunlight or a car ride, or walking or dancingâŚI cried in fear the first time a computer was turned on in front of me. Must be dark screen, and not for long, and definitely not come as a surprise to me.
Bore da @DeAnn, Iâm still working on it all. I have a better understanding now about how light and shadow affect the brain and, in general, why I feel the way I do when confronted by visual noise. All these things still rattle me, but I have adapted much more and have coping strategies at hand when things get too giddy. People still donât get it though, last night I was playing a video game with my son, even though we have a rather largish telly, I still couldnât focus on the things on the screen, as there were many things my brain had to process. My partner suggested I have my eyes checked again. 
Since stroke, I have had my eyes checked twice and they are in such good shape the optometrist suggested I have my next check up in two years. I explained for the thousandth time, that it isnât anything to do with my eyes, itâs my brain. Thatâs why they call it a cognitive visual and spacial condition. My brain is trying to process light, shadow, perspective, and movement all at once in one cohesive flow, it canât do that because part of that processing function is now defunct and it must make new connections to deal with that function.
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I see a Neurologist and Physiatrist. I still go to Occupation and Physical Therapy trying to help with the eyesight, noise and light pollutiion, and walk with those plus the people moving around me. I will start Vestibular Therapy in hopes that will help as soon as I am able to keep my eyes still while moving my head. Harder than it seems, but I will bet you understand that well. Like you, I refuse to give up. I have accepted though, that this might be a life long journey of relearning everything. I still hope to drive at some point, but it isnât really looking favorable. You are an inspiration for me. I so appreciate the help you have given me, just through your sharing info, fun stuff, struggles and successes.
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Unfortunately, not much research has gone into our condition, which means we must face many of our problems alone. We can provide good role models for those who might experience the same, I hope my posts provide some comfort. You are not alone, itâs all in your head, as is in mine. Do you know what kind of stroke you had?
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I had many strokesâŚone hemorragic, 18 embolic due to clots of bacteria (Endocarditis) that had entered my bloodstream. I also had two major aneurysms. I had aortic valve replaced and mitral valve cleared and resewn together, then a surgery to clean out peritonitis caused from feeding tube poking through, then Abdominal Aortic Aneurysm repaired along with attachments to liver, kidney and spine. The last surgery was a coil in a brain aneurysm. The bacteria shot all over my body as my heart pumped blood so spleen, spine, liver, kidneys were all affected. I didnât want to say because it almost seems like bragging. I am in better shape than many people whom have had a TIA, or only one strokeâŚwe are all different in how we are affected. Blindness (but not complete blindness), numb but usable left arm and leg, headaches, pain from AAA surgery, trouble staying on task and remembering sometimes. I am fairly independent and working on setting up ways to get medications without begging someone to go get them. I would like to go somewhere but so far mostly just appointments. I did finally get someone at the Neuroscience Center to help me get a cup of coffee and a salad at the deli there. That is a way bigger deal than it seems with a walker and visual issue. You truly are a Godsend. Thank you so much for the hope and help!
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And I wish for you as well! As I mentioned, I have been quite blessed to be hear, to be no more affected than this, for so much to come back so quickly, to meet people who understand and have found new ways to do what they used to do differently. I havenât been able to navigate the computer again until recently. Still relearning some things and adding a bit of new so I can listen more than read. I truly enjoy the laughs here most of all. It sometimes seems like going through such a rough thing, no one wants to make light of anything with you anymore⌠sad as laughter really is the best medicine.
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@DeAnn wow, youâve been through a lot. Using your nine lives up well by the sounds of it.
Youâre doing amazing given all youâve been through altjough iâm sure you have many frustrations too.
Sending you my very best wishes & i hope your improvements continue.
Ann xxx
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You all are such a lovely bunch! I canât wait to meet with you again in Zoom. I will get up extra early to do that when I know in time.
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I know that stomach fleeets like this
Gosh @DeAnn, well, youâve got resilience and a sanguine temperament to be sure. I savour those moments of relief, like you have described with your coffee and salad experience, I often ask people to fetch things for me as I have to be aware of my energy levels and symptoms.
Fruits and vegetables and salad
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Thatâs quite some shopping list youâve got there DeAnnâŚI meanâŚare you sure you didnât mistakenly come away with notes from the patients in other beds as well while you were in hospital 
Only joking 
Youâre just a walking miracleâŚmuch like my mother-in-law who had pancreatic cancer 6yrs ago and recovered wipple surgery for that. Sheâs just recovering from surgery for lung cancer and sheâs about to celebrate her 80thâŚsheâs a tough nut to crack too.
We salute you 
I was just reading out your list and my daughter says the peritonitis is a nasty one. Iâd ask if you were a cat in a previous life but youâve got more lives than a cat! Youâve got to be admired for surviving all that! Iâm a little speechlessâŚemphasis on the âlittleâ 
Bless you.
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I do notice my words gets inside out
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They put me in hospice, but my sister brought pictures from two weeks before of me sailing and hiking. She begged until they got me to a hospital that could do those surgeries. She is the one who made it happen. You all have been the first people I could speak to that understand the ups and downs, ins and outs, so you all are making it happen as well. I canât thank you enough for helping me navigate the new me.
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It could just be with typing. I have had my own issues with that and still do on occasion. I understand what you are trying to convey most of the time. Once in awhile you reply to a different thread on the one you were previously visiting. I do that as well. I would enjoy chatting with you anytime you like. Bobbi just taught me how to use it.
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I really enjoy pictures of bright colors and of how God son works
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a photo from my vacation just before stroke, for you.
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