Recovery experiences please

Hi all

I’ve posted this here as I’m not sure what category it should fall into.

I had what was diagnosed as a TIA at the end of August and was told that it was very mild. What is the definition of mild? I still get so tired and feel like I’m wading through mud mentally. I run out of steam so quickly physically and don’t feel like there’s been any improvement.

I sit on the sofa and feel fine (apart from needing an afternoon nap!) but when I go to do anything its hard going.

Am I not trying hard enough and just being a drama queen or is this common?

TIA for replying with your experiences

Hi @Fib welcome to the forum! Sadly, there’s no straight answer to your question. All of us who have had TIA’s or stroke have differing effects, some short term some long term.

Mental fatigue is one common one across the board though, and generally not something that we can just push through. Its part of the recovery process with the brain trying to re-align and find new ways of working. Hopefully with your TIA in the medium to long term the symptoms will ease. With any TIA/stroke they are brain injuries and things take time to settle.

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@Fib it is still early days in recovery terms for you. Although your TIA was “mild” it is still damage to your brain & will take time to recover.

Its a fine balance between rest & doing things. I know for the first 6 months after my stroke fatigue hit really hard when i tried to do much. I am almost 12 months in now & still get times when the sofa is my best friend.

You should do what feels right for you and find the balance between activity & rest.

If you haven’t already done so have a look at the below Stroke Association leaflet on TIAs.

Wishing you all the best.

Ann x

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Hi @Fib - I always thought that TIA symptoms went within a day or two. However, my partner had a TIA at the end of April and is still experiencing some fatigue.

Investigation after the TIA showed that his carotid arteries were blocked and he had surgery in August to unblock one of them. I thought that once he’d recovered from that he’d be back to normal but he definitely isn’t.

He isn’t a drama queen and I’m sure you aren’t either! You can only report what you feel and as @EssexPhil said, we’re all different and experience things in different ways.

Best wishes

I know of someone who had a TIA and took a whole year out of work to recover. He was lucky enough to be in a financial position to do so but still… We are all different and even a so called “small” injury to the brain can really take it out of us

Thankyou Ann

I’ve been doubting myself as the recovery just seems to be so slow and there’s a bit of me wondering if comparatively I should be coping better.

That’s the problem perhaps, I need to stop comparing and be more accepting that this is the way it is.

Thankyou again

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A year!

I was discharged and had bright ideas of going back to work (WFH) a month later…this on the back of sitting around feeling quite bright and OK. Optimism at its best!

Cue…sitting in front of the laptop and my work email and just not getting my head around the content. Composing a 4 sentence email about something that was quite mundane previously seemed like writing a thesis.

Fortunately my employer has been great to date; just in terms of getting back into the swing of things I’m the one who’s impatient.

Onwards and upwards it seems!

Ooops - replied in the wrong place. Definitely not quite the time to go back to work. Comprehension is still a work in progress!

Thankyou JSCAPM

Prior to this I didnt know much about strokes despite my father having one. He was quite badly affected physically whereas I’ve got back on my feet relatively quickly speaking. Its the tiredness and woolly thinking I’m finding it hard to get to grips with and is very frustrating.

Hello. This is my first post on this very helpful site, I also had a tia on 25th of August, in hospital for 5 days, I thought at the time a few weeks and back to my work as a builder, at this moment can’t see me back for a long time yet, you’ll find even half an hours work feels like 14 hours and is hard going fatigue and woolly head and legs like jelly , good luck but looks like small steps it has to be. Good luck on your road to recovery.

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@Nor15 welcome to the forum. Sorry to hear you’ve had cause to join this friendly group.

I had a stroke last Dec & I genuinely thought i’d be back at work by Jan. It isnow Nov and i’m still not back at work.

I think the hidden effects of TIA/Stroke often take longer than physical effects to recover from. It’s still very early days for you yet & taking the time to recover properly is really important.

Good luck with your recovery.

Best wishes.

Ann x

@Nor15 welcome to our forum but sad you had your stroke.

@Mrs5K gave good advice from experience. I’ve had to quit working as I cannot cope with classroom activities or noise.

I’m wish you well and be kind to yourself listen to your body. Kind regards Loraine

@Nor15 welcome to our little group, though I’m sorry you had a TIA.

Getting back to work after a stroke/TIA can sometimes take longer than we initially think it will, be patient with yourself, rest when you need to, pushing yourself to the limit can be counterproductive.

Wishing you all the very best

Shwmae @Fib, I know these TIAs well, I had six before a major stroke. What I understand of TIAs is that they don’t leave “permanent” damage but do have symptoms. Conversely, a silent stroke has no symptoms, and a stroke has lasting damage and symptoms. I think it’s the difference between dead matter and bruised matter. Bruised matter will heal over time and spark up again, dead matter requires new pathways to be formed.

A TIA may be considered “mild” due to its size, I guess, but I also imagine that where the TIA landed will have an impact on the kind of symptoms you experience and what activity or thought processes trigger those symptoms. I always think that fatigue is not a symptom itself, it is a result of symptoms.

You can help manage fatigue by resetting the brain. This can be done by way of meditation, Mindfullness, &c. So, for example, it is common for stroke survivors not to feel “rested” after sleep because when we sleep, the brain is actually using quite a bit of energy to prepare itself for when we wake. So, emptying the mind or resetting the brain is a way for it to go into sleep mode without actually sleeping, and conserve energy for the next bout of activity.

At your stage of recovery from a TIA, the brain is doing self-repair, so let it. Sleep and rest, plenty of it. It’s preoccupied, getting neurotransmitters blinking connections again, if you fight against it, it can’t do its job. After six months, most of the self-repair will be finished, and then longer term management needs to be put into place depending on what residual symptoms remain.

Thanks for all your replys, all extremely helpful.

Ciamar a tha thu Rups, thanks for the reply.

So you’ve been there and have the t-shirts! Your advice is worth taking; it’s a shame noone ever said anything like this at the beginning. I’ve been feeling a bit lost and very guilty about not doing anything.

Funny thing is that before the TIA I was very good at doing nothing - I guess its the difference between choosing to and not being able to!

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Hi Nor

Its a good job I’m not a builder as it takes me all my time walking around the house let alone manual labour!

I think I thought much the same as you… get back on my feet and business as usual, kind of like after having flu. No such luck.

Slowly does it it seems… who was it that said patience was a virtue - I don’t have much of it.

Hope you’re having a good day so far!

Hi Loshi, is noise intolerance a stroke thing?

I’ve been finding noise levels hard to cope with (nails down a blackboard levels) but thought I was just get old and cranky lol

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@Fib definitely I cannot bear noise. I’m always turning radio tv anything noisy down.

Sometimes I’m really sensitive to the sun if it’s low or even lights too

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@Fib i too have difficulty with noise since my stroke. Things like cutlery on plates drive me insane. I’m always turning things down. I think it is more common then the drs would have you believe.

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