Was it or wasn't it a fit? That, is the question!

Hi everyone,
July 2018 things went wonky for me and I collapsed three times with severe dizziness. I didn’t go to hospital but as I was also experiencing hypertension in back of head and coupled with migraines one after the after for around a week, I went to the doctors. They arranged for me to go and see someone and have an MRI scan. Whilst the doctor said he thought I had a T.I.A. he couldn’t be sure as was left too late (I think I have explained this in forums before). I still have right sided weakness and need a stick to help my balance and sometimes when tired I struggle to get what I mean out of my mouth. Since then I have had two heart attacks (last in April 2021) and was hospitalised for a week for serious asthma). So, for 2022 I had almost made it an entire year without going to hospital. On December 18th I had a tooth removed as an emergency. On Monday 19th I woke up and said to my daughter I didn’t feel right. I woke up on a trolley in a corridor some 5 hours later having lost consciousness (my daughter called for an ambulance). I generally didn’t have a clue what was going or even if I was me. The team from facial maxillo gave me a procedure to remove the rest of the infection (that hurt like mad) plus two lots of I.V. antibiotics. I got out of hospital on the 23rd. The hospital have put on my records that it might have been an infection but could have been a fit as a stroke or bad T.I.A. can cause that years later. This has had the result of getting me down and depressed owing to the nature of how it happened. I was never told this might happen. Since then thankfully, I have had no such similar episodes. I am sorry it’s been a bit of a waffle, trying to put context to this, has anyone ever experienced something similar to this themselves?

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@Woolamala you’ve certainly had more than your share of misfortune.

I don’t have personal experience of seizures but I do know it can be quite common after a stroke. I’m not sure how you would find out for sure but may be worth asking your GP as I would have thought a seizure would show up on a scan. I’m not completely sure about that though.

Hopefully it was a one off & you’ll not experience anything like that again.

Best wishes.

Ann

@Woolamala oh my gosh what a journey! I’m glad your through it. It sounds horrific all this which has happened to you and I’m sorry you have had to go through this.

As @Mrs5K said it the seizure should show up on your scan so you could have a chat with your Gp.

Thinking of you and hope it doesn’t happen ever again, best wishes regards loraine x

Hi Woolamala

Interesting post and by all accounts you’ve had a torrid time.

I’ve read a lot about this subject as I suffer from focal aware seizures post stroke, but also have a large stenosis in the middle of my brain which may or may npt cause me a whole load of grief.

Clinically I’ve either had 500 TIA’s and counting or have had 500 Seizures and counting, no one in any clinician seems to be able to work me out one way or the other.

I typically suffer a major episode every 10 to 14 days and lesser ones as often as everyday sometimes up to 20 times recurring.

My reason for posting is this, it is very difficult to diagnose a TIA or Seizures unless it’s caught in the act, which is highly unlikely (unless the seizure is full on tonic clonic)
The differention between the two , in my very limited understanding is about subtraction or addition.

Strokes or TIA’s are subtractors, and generally lead to sensations bwing taken away, loss of sight, loss of feeling/numbness, loss of speech etc, each is subtracted from the normal, so a collection of losses in sensation or ability.

Seizures are generally additions, with additional sensations, added tingling, added ringing in the ears, added taste, metallic in the mouth, added visuals/auras. additional involuntarly movements all sensations being brought to and added on to the normal state.

Although it’s not always the case for either, which makes identifying each hard, I’m led to belive that this is how we and clinicians decipher what happened by either more or less sensations.

I have taken to filming myself when I have an episode, and then watching them back for tells and evidence as to what has been happening, bear in mind seizures are any interuption to normal brain function, the slightest involuntarly movement and even a migrane are a type of seizure and happen for most of use regularly with little comprehension from ourselves.

I hope you find some peace soon Woolamala and get some respite from your ailments.

All the best
Alan.

  • Positive symptoms indicate an ‘excess’ of central nervous system neurone electrical discharges and may be visual (eg, flashing lights, zigzag shapes, lines, shapes, objects), somatosensory (eg, pain, paraesthesia) or motor (eg, jerking limb movements).

  • Negative symptoms indicate a loss or reduction of central nervous system neurone function (eg, loss of vision, hearing, sensation or limb power)."

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Hello Ann

I’m afraid a seizure won’t show on any scan, only on an EEG which is a recording of real time brain electrogram, brain wave or electricity.
The interruption to normal brain electroram has no way to damge the brain, any damage caused by a seizure is caused by the secondary symptoms of the seizure, if the person lost the ability to breath or pump blood normally, but not from the seizures itself, that’s just like a sharp jerky earth quake graph on what would be a normally smooth wave. It leaves no trace after it’s gone…

Still waiting for my EEG results after two months, I’m not sure I’ve picked the best time to need the NHS.

Take care.
Al :slight_smile:

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@Pontwander Hi Al, thanks for the clarification. I wasn’t sure about the scan.

Hopefully you’ll get your EEG results soon. You’ve definitely not picked the right time to need the NHS.

Best wishes

Ann x

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@Pontwander hi thanks for the post for @Woolamala it’s very interesting and informative.

It’s worrying me now as I used to suffer with severe migraines with aura, numbness, nausea and sight loss on an average every 2 weeks sometimes every 1 depending on my stress levels for 48 years it would wipe me out for a day or 2.

Since my stroke obviously I’m on thinners which has stopped my migraines. But I’m starting to think they were seizures.

I did try different medication but not for epilepsy which the doctors wanted me to take. My question is has anyone else had these severe migraines too then a cerebellar stroke? Thanks loraine

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@Woolamala hello I have had two seizures, both resulted in hospital visits. after CT scans each time they never showed up, speak with your neurologist if you have one, if not ask GP to refer you to one. seizures are common with strokes

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Thank you so much for your reply and the link :slight_smile: This makes sense to me. I definitely had a loss of ability and most of my senses. Even my sight was like trying to focus on dots. I did have a CAT scan however, because it didn’t show anything significant it was left at that. I have recently moved to Wales from Torbay (that hospital knew me very well). At Torbay I used to have MRI scans as well. Here, just a CAT scan. More worryingly the hospital told my daughter they couldn’t get my notes as that was in England :face_with_diagonal_mouth: Anyway, reading about your situation, that must be so frustrating for you and I hope they get to the cause soon. Again, thank you :sunglasses:

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Hi all, thank you for your replies and making me feel ‘human’ rather than an anomaly. It doesn’t help that this is the first call to 999 since we have moved to Wales. Nearest hospital is 16 miles away. The hospital told my daughter they couldn’t get my records from my previous hospital in Torbay (for whatever reason) and initially they thought I was putting it on. Even the following day I felt disorientated. The only time 999 has ever been called is when my daughter knows it’s serious and I have always ended up in hospital with something wrong. For the first time I actually feel scared if I need to go to hospital again :face_with_diagonal_mouth:

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Thanks for this @Pontwander … I think that’s the best explanation I’ve heard than from any Consultant! :+1::clap: :sparkles:Anne :sparkles:

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Hi @Woolamala, so sorry to hear all you’ve had to go thru … I can relate to ‘notes being inaccessible’, mine were ‘lost’ when I was an inpatient in 2021. (Thankfully mysteriously found).

That’s so incredibly stupid of the medical staff that surmise that symptoms are imaginary or ‘ all in your head’ (excuse the pun!). They could be wasting valuable time. Especially as you’ve had heart issues (not that I’m a health professional. Don’t be afraid to ring 999 or 111 … that’s what they are there for.

Take care :sparkles:Anne :sparkles:

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