Tiredness still

The cause of dizziness may be vestibular - ask your GP about it any get a referral. It might help. Good luck!

As I have said on this forum that is what my stroke affected was my head I cant describe how it feels. My husband is always asking me to descriibe it and I cant it feels as though I have got a block in my head and my eyes are affected I have got double vision.It helps toĀ  know others have got something similar. Best wishes to you all. Norma.

As I have said on this forum that is what my stroke affected was my head I cant describe how it feels. My husband is always asking me to descriibe it and I cant it feels as though I have got a block in my head and my eyes are affected I have got double vision.It helps toĀ  know others have got something similar. Best wishes to you all. Norma.

All the best.Ā  It's great to share.Ā  Take it easy.Ā 

Thanks = I will try the doctor when they become communicable!

There has definitely been dizzyness, although I think not as bad as others have suffered. It passes quickly for me. There is also a feeling almost of tunnel-vision when it gets hard to process anything beyond a very limited focus. That could almost be described as dizzyness, or at least something akin to it.

I think any headaches I've had have just been the normal sort...

Ā 

I can definitely associate with how you describe the battery running down. My job is pretty much all social interaction and heavy thinking though! At least I'm not having to get up early to commute at the moment so the sleep isn't disrupted.

I'll have to try and read that book you recommended.

I am sorry to hear about your issues. I have taken 5 months to build up my stamina, but I still need a lie down for about an hour most afternoons. Are you sleeping okay? A good sleep makes a big difference. I try to take my meds three hours or so before I go to bed. I find that this helps.Ā 

Are you on Statins? If so, what strength? I believe that Statins can cause issues with sleep.

I have found that a good walk every day helps to build up physical strength.

I find that puzzles help with mental strength. I enjoy playing cards, patience. This helps a lot.

I find that talking to people can be tiring, especially when there are several people, so I try to reduce the time, so speak less!

I hope thatĀ theĀ above is useful.

Ā 

Graham

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Hi norma, I know exactly how you feel. So you are not a loan. It's good to share, so others can read.?

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Thanks for replying nobody seems to understand they just say I look well if only they knew.so you are right its good to share.

Jackie, thank you for responding.Ā  I'm sorry to take so long to respong back as I've been off computer for a few days.Ā Your ideas do help, and it's encouraging to know others are going through the same thing. Thanks again.

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Dear Norma

i had a stroke long before covid, so i was out and about. With many acquaintances. The phrase "you look so well" was frequent. Many were just passing the comment but a number clearly thought i couldnt possibly be unwell. I think that the medication might help us to tan a little. And i spent a lot of time sitting outside.

there is a huge failure to understand strokes. And no one can begin to grasp what we go through.Ā 
the association of the illness as being only for the elderly is not right. All ages get strokes, including babies.

only another SS understands.

perhaps we could all go and live together.

colin

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good idea Colin thats the problem we cannot even meet up with anybodyĀ  at the moment.

Hi everyone I had my stroke two years ago before that I love to play music I was fanatical musician my left arm and half a mouthful but the strange thing about it was I had no interest in music and I still find it hard to feel the same way anymore I was a very good entertainer musician I played guitar banjo keyboard arrive three poems about the stroke but I can't seem to find anywhere to publish it I said I still well as for for tea well I don't think we realise everything I now have to walk with a walking stick and sometimes I just fall over completely without thinking about it I'm glad that I've got someone to pick me up sometimes ha ha the brain is a strange thing it kind of works in a strange way when I had a stroke I just wanted to smash all my instruments because I couldn't get the same feelingWell after I had to throw I took to painting and I've painted 10 paintings in two years and it seems to me I never painted in my life and I have the same passion for art and I had the music I'm sad about it princess I can never listen to other people before and now I can I likeĀ 

Listening to other people the brain has switched strangely enough

This is one of my poems tom

Dizzy falling onto a space
Where death and life have
No trace
Twirley whirring round and round
In the air cant hear a sound

The ground has gone
Tell me where the fround has gone

You reach for something a sudden shock
Your mind begins to run amock
Your brain gone wild the circuits dont respond

The ground has goneĀ 
Tell me where the groundĀ 
Has gone

You put tour feet upon the
Ground but no ground can be found except a dizzy whirring sound
You reach for something to support
And find yourself finally
On the ground but thisĀ 
Time cant get up you layĀ 
There on the ground
But still gravity flees from
Your brain
And you find once more where you remain cant move
Your legs cant walk your arms are numb
Your speech us slurred
So noone knows whats going on
Except you and your stroke

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Ā 

Ā 

IĀ 

Ā 

Ā 

PoemsĀ from Thomas Clelland

Ā 

THE STROKE

Dizzy falling onto a space

Where death and life have no trace

Twirley whirring round and round

In the air canā€™t hear a sound

The ground has gone

Tell me where the ground has gone

You reach for something a sudden shock

Your mind begins to run amock

Your brain gone wild the circuits donā€™t respond

The ground has gone

Tell me where the ground has gone

You put your feet above the ground but no grand can be found

Except a dizzy whirring sound

You reach for something to support

And find yourself finally on the ground but this time

You canā€™t get up

You lay there on the ground

But still gravity flees from your brain

And you find once more where you remain canā€™t move

Your legs canā€™t walk your arms are numb

Your speech is slurred so no one knows whatā€™s going on

Except you and your stroke.

Ā 

Ā 

Ā 

THE LITTLE MAN INSIDE MY HEAD tom clelland

The circuit has gone wild

The little man inside my head is acting like a child

Heā€™s turning all the dials around and all the wires heā€™s changed

And all I feel right now is confusion in my brain

Iā€™d like to ask that little man to put the plugs right back

He knows where they all are

Canā€™t he put them back?

I tried to change them myself but strange enough it seems

The little man has altered my mind thought and my dreams

The little man inside my head has changed the wires around

I try to find some thought I had before but now it canā€™t be found

Iā€™m looking to the future but the future seems so bleak

The little man inside my head tries to make me speak

Before I used to go and have no feelings

That changed me

Controlled me

But now that little man inside my head

Heā€™s turned the plugs around

This circuit isnā€™t the same no more

The same cannot be found

Itā€™s like that little man inside my head heā€™s changed the plugs around

Heā€™s acting like a little child and turned me upside down

I donā€™t understand whatā€™s going on

It seems to me too strong

Iā€™m fighting but I cannot say

People would say depression is on my way

But I donā€™t suffer from depression

I know where it comes from

But the wires seemed to have been changed

But how do I get them back

Maybe a little man in too much hurry made one of the little plugs crack

And now I feel my head is whirling going round and round

Iā€™m looking for that little man but the little man cannot be found.

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Dear Tom,

Ā 

Iā€™ve been trying to email you yourĀ poemsĀ for a while now but the email keeps bouncing back.

This has never happened before and Iā€™m not sure how to fix it.

So far, Iā€™ve been trying to attached a word document to the email and maybe that is the problem.

Let me try and copy theĀ poemsĀ to the subject instead:

Ā 

PoemsĀ from Thomas Clelland

Ā 

THE STROKE

Dizzy falling onto a space

Where death and life have no trace

Twirley whirring round and round

In the air canā€™t hear a sound

The ground has gone

Tell me where the ground has gone

You reach for something a sudden shock

Your mind begins to run amock

Your brain gone wild the circuits donā€™t respond

The ground has gone

Tell me where the ground has gone

You put your feet above the ground but no grand can be found

Except a dizzy whirring sound

You reach for something to support

And find yourself finally on the ground but this time

You canā€™t get up

You lay there on the ground

But still gravity flees from your brain

And you find once more where you remain canā€™t move

Your legs canā€™t walk your arms are numb

Your speech is slurred so no one knows whatā€™s going on

Except you and your stroke.

Ā 

Ā 

Ā 

THE LITTLE MAN INSIDE MY HEAD

The circuit has gone wild

The little man inside my head is acting like a child

Heā€™s turning all the dials around and all the wires heā€™s changed

And all I feel right now is confusion in my brain

Iā€™d like to ask that little man to put the plugs right back

He knows where they all are

Canā€™t he put them back?

I tried to change them myself but strange enough it seems

The little man has altered my mind thought and my dreams

The little man inside my head has changed the wires around

I try to find some thought I had before but now it canā€™t be found

Iā€™m looking to the future but the future seems so bleak

The little man inside my head tries to make me speak

Before I used to go and have no feelings

That changed me

Controlled me

But now that little man inside my head

Heā€™s turned the plugs around

This circuit isnā€™t the same no more

The same cannot be found

Itā€™s like that little man inside my head heā€™s changed the plugs around

Heā€™s acting like a little child and turned me upside down

I donā€™t understand whatā€™s going on

It seems to me too strong

Iā€™m fighting but I cannot say

People would say depression is on my way

But I donā€™t suffer from depression

I know where it comes from

But the wires seemed to have been changed

But how do I get them back

Maybe a little man in too much hurry made one of the little plugs crack

And now I feel my head is whirling going round and round

Iā€™m looking for that little man but the little man cannot be found.

Ā 

Ā 

Ā 

PRESSURE

It feels like a lid

I want someone to lift the lid and make me free

For the pressure of the lid

Itā€™s powerful to see

It feels like a lid push down

Itā€™s pushing down on me

Nobody can see but I can feel the pressure

Iā€™d like it to be gone

The pressure of it all is the lid pushing down on me

And causes me to feel but I want to frown

I wish you would be gone

Itā€™s pushing with such extremity

Stopping me doing the things that I want to do

Itā€™s pushing down and down and down so I can feel the pressure that nobody else can see

Things I used to do I canā€™t do anymore

I want to do them

But the lid is far too strong

Down

Pushing down on me

I want to push it right up

The only way that I will be free

The only way that I see

Is that I push it further

I have to keep on pushing until I push it right up.

Ā 

Ā 

THE STRANGE LAND

I fall upon the ground and find myself in this strange land

A strange land I canā€™t recall

I canā€™t remember when I fell

Or if I fell at all

This strange land is not green and pleasant

It is rugged and sharp and decidable

I canā€™t find it nowhere

There is nothing there for me

This strange land, I have to find it again

With all the worries, doubts and pains

This strange land comes back again to my mind

I flounder in this land

So many hold out their hands

But they canā€™t understand

It is a strange land, strange costums,

Strange world, strange thoughts

People say a new beginning

But I think no, not as it ought

I tell myself in this strange land

It is like there has to be a plan

I canā€™t plan in this strange land and

I donā€™tā€™ understand this strange land

There is a maze around me

I feel I could run and run

Never going anywhere

I feel I should sit down.

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Tom clelland alias elpheric

Too true.

but we are allowed to move house, so we could move then await the end of covid.

we can also daydream

What happens in my experience is fatigue and lack of energy the brainĀ 

has had a trauma and needs to adjust it literally needs to make another path

and while it's doing that a lot of energy is taken so you will feel it I was a musician and my left-arm went and my half my mouth but I carried on persevering I want to smash your instruments up but I didn't do it and said I took a part instead I took a part art art is very therapeutic but even that takes an effort and if someone is trying to talk to me when I'm doing it I can't do it I can't concentrate concentration seems to be harder now memory also I don't think it's out of the ordinary it will pass it will pass the main thing you need people around you who can sympathise and understand what you're going through that is the most important thing and I hope I've helped it's strange when the thing you love doing most such as music that was a fanatic entertainer guitar playing banjo banjo keyboard love to know no I look at it I just think I wish I could get it back so I can't compensate by art anything you can do to create something else to do crosswords because I make my brain work The brain has to be fed another journey and when this happens he gets used to it they say we only use about 20% of our brain so the 80% is still dormant so there's hope yet keep in touch if you want to I put my poems on here and I wanted other people to see what we go through tom clelland