My stroke happen when I was 40, now 14 yrs ago. The part of the brain it effected is to do with sight and balance mainly. I have always found it difficult to explain how it effected me and continues to affect me. All of my continuing symptoms are now unseen, these are mainly fatigue, dizziness and a faint feeling when I move my head too quickly. Some days I don't have the energy and just sleep, eat and watch documentaries on Youtube. I have learnt to except and enjoy this quality time without feeling guilty, tomorrow is another day.
I was referred to the neurologist after getting nowhere with NHS physio and my GP. She prescribed me with Amitriptyline 10mg which is actually an antidepressant but in low doses, it is used for nerve pain, numbness and stiffness. It helped me a lot and got rid of the numbness altogether. It takes about 6 weeks to kick in but well worth the wait.
The problem with nerves is that if you do the exercises too much, it can irritate them and make things worse so it was very much slow and gentle movements which seem to work best for me. Pilates was also recommended by the neurologist but the pilates that use machines rather than laying on the floor version. She also told me never to exercise on a morning as nerves can be quite twitchy and tight after sleeping all night and don't like sudden exertion so best to wait till afternoon when they've warmed up and got used to moving around.
The only thi ng the neurologist came up with was he thinks it is my inner ear I had blood tests and that was that didnt here any more. The doctor is useless like you he says it is depression annd anxiety which is completely wrong I have been back and forward to see him and it is a waste of time. I have had this head problem since the stroke in June 2017. I hope somebody has some ideas for us in the meantime we have to carry on. All the best. Norma.
Thanks to the reply,that has been so helpful. Everything you said I've been doing lol exercising first thing in the morning hard exercise at that trying to build muscle and I've been doing that for five years you can imagine what damage I must've done. A pill called Baclofen and Botox injections were mentioned on my phone call with the neurologist. It's good to hear that they helped you and there is light at the end of the tunnel?
I had two strokes two years ago my problem is I have no energy feel so weak it makes me feel quite sick and dizzy I am 77 my left side was affected and my sight I can walk short distances with a walker outside has anyone else found this and is there any advice please 9
Hi Veronica, I had a big stroke 5 years ago and a small stroke ina May last year. I am also 77 and have left sided weakness. Post stroke fatigue has never left me, but I was advised to rest for a hour every day. It always comes on around noon, but after resting I can cope with the day quite well.
When it comes to walking, I started on a frame and built up my strength and now use a stick. I make myself walk twice a day. I also push myself to do a little more whenever I feel I want to stop. My left arm and hand are weak but usable so I try to utilise them all I can. Colin ,on this site, often points out the injury is to our brains not our limbs,
The important thing is to be careful and never overdo it. I am also lucky to have a partner who always tells me off if I go into self pity mode. Finding the energy to do things is always a struggle, but please keep trying.
I've heard of the Botox injections but never had them myself but it's good that they are forward thinking with the treatment. The trouble with GP's is that they know a lot about lots of things but aren't specialist in many! Or to put it blunt, a slightly better version of 'Jack of all trades, master of none '
Hi all, just like to share this with you all, my stroke was in June 2020.It was diagnosed as a posterior stroke, which started as extreme Vertigo, then progressed to loss of power in the right side of my body, arm leg and hand, and speech.fortunately I wasn't in hospital for long. But like most of you, I now experience what starts as a heavy head, accompanied by dizzyness, and fatigue, this comes and goes.I have good days, and other days where I just feel like my head is going to explode, usually after rest it will gradually start to go.
So it's been reassuring for me to read, that I'm not alone, so thank you all?
Cerebellum stroke 1.5 years ago ,also left side weakness. In bungalow mostly no stick needed , apart from shower room ,loads of grab rails to get myself onto fixed shower stool / always feel like programs of baby orangutans swinging tree to tree . Minute I am outside other things happening (sensory overload ?) I need walker with seat ,to rest . Only managed about 300 yards ,disappointed couldn't improve . Thought slow mobility scooter, (Luggie) would be answer . Bought second hand , had seen others whizzing around , however never realised, with brain damage, just how absolutely exhausting on my brain this would be , again they are probably better if just disabled ? Hoped to have improved a bit ,but poss better at accepting now . Also great to be alive .
Thank you SO MUCH for reminding me of this little gem ? I've started the poem pandemic for 2021 and sent it to loads of friends!! I hope our smiles will scare Covid away. Big thank you xx
Well, I had a stroke back in April 2020, nine and a half months down the road I suffer from headache, dizziness, nausea and fatigue nearly every day. Like you said, it comes and goes, sometimes the symptoms aren't too bad. God knows why. You are definitely not alone here. Spoke to my GP and consultants several times with no idea or recommendation to ease off the symptoms.
Great to know your experience. Dizziness, fatigue and headache are the key things. Sometimes, I find it hard to get out of bed due to feeling sick or dizziness. Really odd.
Glad to hear your life is almost back to normal. When you talk about fatigue, does it include headache and dizziness? Mine isn't just tireness, but headache, dizziness and nausea.
Thanks Chris, Haven't spoken to any one other then all of you here, and of course my other half.very reassuring to know others suffer these debilitating symptons. Thank you all?
