Stroke pain

How are people managing their stroke pain , has it eased of after a long time, does it last all day do people take medication or just standard painkillers?
My pain is every day samo side same places always the same intensity building over the day.

Hi @mrfrederickson I’m 14 months post stroke. It used to drive me nuts. The head pain. I used to drink more water, paracetamol didn’t really work for me. I was already taking amertriptyline for head nerve pain they increased my dose. It did help me a little bit. But I can remember panicking with every pain I felt and I think I was more aware as I was scared incase it happened again. Once I joined this group I realised we all suffer with it in different levels and ways. I think I’m safe to say it does get better with time. Though fatigue is my biggest issue I have to gage what I’m going to do so as not to wear myself out for next day. I’m sure someone else can give more support and answers too. Good luck in your recovery and best wishes Loraine :blush:

@mrfrederickson the only pain I really suffered was head pain. It wasn’t really a headache but felt like I had a heavy, fuzzy head all the time. Sometimes felt like I’d been hit over the head. I used to take paracetamol but often it made no difference. I still get it but not as often now.
If your pain is really bad I would get the Dr to prescribe you something. Hope it eases soon for you x

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Hi thanks for sharing my pain is like a fuzzy head and cold pain in my left side paracetamol and codine hold it at bay for a short while but it is the same every day sadly no sign of it lessening or stopping.

@mrfrederickson I think you should speak to GP. They may be able to prescribe something to help. I thought my head pain was never going to go but one day I woke up & thought oh I don’t have headache today. I still get bad days with it & is worse if I overdo things. But just know there is hope that it will improve. Make sure you’re drinking enough too that may also help x

Thank you for that added detail if the pain were to sub side or lessen I would cope with the current painkillers rather than go on gabapentimor similar such opiod medication I will discuss with my GP next week when she calls, appreciated

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Hi @mrfrederickson as @Mrs5K mentioned please have a word with your GP to get something prescribed to ease the pain, wishing you all the best, take care

Hi, I was prescribed Baclofen to help with the high tone but it really helped with the pain too as relaxed my arm and leg. Might be worth asking your GP or physio. Good luck