Continuing the discussion from My latest watercolour:
IE Lousy painting great hand or great painting continued disability? (Or in my case whichever hand lousy picture)
I’ve never found the visceral understanding needed to render an image. But I used to be quite good at Celtic knotwork and calligraphy. I’ve not tried them since my stroke because of learnt non-use. Something that was (innocently) suggested promoting in the parent thread
I also did a program of Constraint Induced Movement Therapy. It convinced me that a good idea can be bent out of shape by people who don’t understand, whose experience is second hand plus book bound.
To properly understand (grok) it is helpful to reframe; It’s purpose is relearning your use, un-learning learnt non-use, learning reuse
It’s a neutral bystander that reinforces positively and negatively to the forces around -
There are more forces that operate on the negative side They work individually and cumulatively. On the good side the forces only have effect when used in combination. It’s a very uneven playing field, massively stacked against us.
We are told that recovery happens ‘proximally to distally’ - and yet we see #StrokeWarriors typically recovery function in their walking faster than in there upper limb. My foot is obviously more distal than my hand, What about yours or anyone’s & everyone’s?. So if there’s any truth in this axiom there must be other mechanisms in play as well Or we’d have our hands working before our knee and ankles
I wrote this while eating my toast. Both activities were entirely prejudiced for my recovery by learnt non-use*
Since my stroke I have not become a hopping champion. I did not hop to my chair this morning but walked. I had no alternative when relearning to walk than to use the non-functional leg as best I could. But when drinking my coffees since ‘the day’ I have a choice which hand to pick it up with - hence now my upper limb is way behind my more distal lower.
* I haven’t done calligraphy because I don’t want to learn to do it left-handed. I didn’t actually entirely eat my toast left handed I opened the jar of marmalade two hand it and I used my knife right handed for about 60 seconds before the mess and frustration made me revert to the left hand. In that revision was my failure. I cleaned my teeth this morning left handed another failure although I normally do a third of them right handed only at 2/3 (partial) failure
These thoughts have been brewing with me a long time.
I applied for the community coordinator role in part because I believe we have to curate our own recovery and those who are advising us as ‘experts’ are not. (A chemist working for Windsor and Newton, Rownie, or Dulux is not a Renoir or Rembrandt)
We don’t need somebody to decide whether we can say ‘sex and travel’ - We would benefit from coordinating our thoughts about how we have the best advice for the best post stroke life - of course I didn’t even get an interview because I’m not experienced enough…
Different Strokes had a meltdown last weekend. It caused the formation of a new group . One not bound by the self-interests of a fundraiser as the admin so greater freedom to discuss topics of benefit to strokes survivors independent of religion (hosting orgs in denial that other orgs exist).
That has enabled some conversation
A painting competition is a jolly good thing community needs cohesion and competition and art are binding agents
Which hand you use has implications both for the friendly rivalry community with each other that’s also the battle against disability
Purposefull stroke community with aims beyond sharing social support needs more than we have seen so far emerge within the churches that erect the buildings indeed those churches are restrains