How to remain positive?
Hope of recovery
!!!
How do people keep focus on a recovery in the face of little Changes continued discomfort and ongoing suffering.?
I know I’m not a patient person, but continuing with the same ground hog day seems pointless
Hi yes I keep a diary but internally I’m facing reality that my life is set in the face of no change to a state I require.
My mantra is rude and keeps me trying my good lady tries to talk it up but eventually she will accept that this is our life until we die which I’m not prepared to accept.
Keep on keepin’ on
Thanks I’m looking for something a little bit less pain or an arm basic movement, nothing more it woul help me believe
Yes thanks Bobbi, my physio did not feel it was a good idea. On a positive note I can raise the arm as off to drink and it was able to open from my side to allow my wife to wash my pit in the shower today so was pleased with that improvement, just want a bit more, it’s a brain repair job which as we know takes many years and typically over 7 or 8 years from the people I know at the stroke association. Time will tell
Until I die ? Bit drastic , but with some , BEST to try & accept this , no improvement, no good beating yourself up , reading about improvements, with others. Trust me , I have done this, for nearly 4 years. Easy said though. Can not accept it still , though. Most of my day is bed bound .
Son & daughter & grandchildren visit, 3hrs max poss, recovery 3 days, but love it . Soo appreciate simpler things now. Good speaking David.
Yes at the very earliest point of the stroke the arm was limp snot movable but now after trying to emulate the involuntary movement it now can lift and open outward, just a lot of effort to make it do anything
@mrfrederickson as @Mahoney has said you need to try & have a positive mindset. Easier said than done i know. Try & focus on small, achievable goals & stop focussing on the longer term. No point worrying about how you might be in 10 years time…who knows where any of us will be then.
Acceptance is a big part of stroke recovery too. As an example I cannot walk very well. I have accepted that this is the case & live my life adapting to my style of walking (very slowly, short distances, dragging my leg along). But alongside this I have hope that it will improve. Rather than do specific periods of physio throughout the day though I now incorporate it into other things. I want to live as best I can.
Have you ever considered something like CBT? This is about changing how you think about things. It would help you focus on what you can do rather than dwell on those you can’t.
You have come a long way. You’ve returned to doing some work, you’ve been out & about walking, sight seeing, you’re planning a trip away. All great stuff.
Sending positivity your way.
Thanks Bobbi I will be singing like a canary if it comes good may even dance a jig.
Hope you improve enough to be up and about I expected myself to be in a Steven hawking chair for the remainder of my life. Clearly not so pleased about that and trying to adjust my mindset to cope better in the long term
And whenever David talks about being a burden and feeling guilty about what he is putting me through - (sigh) - I tell him that it is an opportunity to be loving and kind every day which is a lovely thing. (Wifey.)
Yes David the little things are really important, I’m just not good at seeing this condition as never ending , even after being run over as a teenager I recovered it took a year but I was up and walking and riding my bike but not this condition no majoimprovement even after 2 years, was back to my old self and back in school in 6 months after flying over a roundabout
Just keep going 
I was sxxt but now I’m good 
just keep on doing it and laughing 
Hey now, what’s all this with the pointlessness business…and that’s an awful lots 's’s in those two words 
But you can’t be giving up now, you’ve come so far 
You’re walking again, and carrying cups of tea 
Heck, you’ve even managed to lift your arm away from your body and now you can raise your arm
What the heck is that if not progress 
Good progress!
Progress you should be taking full advantage of every minute of the day, because once you start you should never ever stop until it’s back to normal.
Roll that shoulder around, shake it up and down, wiggle and shake your arm, play around with it to keep loosening it up and keep on doing that.
Use it or lose it! Never give up, nothing is pointless!
Look, yesterday we were going to a family fun sports day gathering over at my sister’s house. Taking a shower in the morning, I managed to slip a disc (done it before and know how to fix it 
). I was seeing stars and about ready to pass out in agony.
There was no way I was going to miss that day because there is no giving up, period!
So I wrapped up and went lay on the bed, I won’t bore you with details of how. Rolled and rocked around and along with a few manipulations, managed to pop it back in place and finished getting ready. Took a couple pain killers and I was raring to go. There’s no darn way I’m going to be laid up in bed missing out on all the fun and games. And we got there only an hour later than planned 
The thing is, you can’t let a stroke, any more than a slipped disc, stop you from living and enjoying your life! You only get the one life, why waste it maudlin? You need to be living in the here and now and certainly not 8 years from now.
And next time, we want to hear you shouting out your good news so we can all help celebrate it with you 
He is a lucky man to have you David’s wife, my misses say’s similar thing s about my recovery
Sorry to hear about the disc sounds terrible glad you can cope with it.
I’m never giving up just facing a few mental hurdles but time will see them clear ed. off for lunch out with my good lady as we get closer to our anniversary I will be more positive.
Take care Lorraine. X
I feel your frustration, cos like you I’m very impatient and theres no definate timescale for recovery
I’m now 11 months on from the stroke. everyone at the time kept telling me I’d got time on my side ( I was 47 when it happened) Late last year I was convinced I’d be recovered by now and back in work by now, but then I developed central post stroke pain and I’m still here at home, even though mentally and physically I feel pretty good
While I wait for an appointment to see a stroke consultant and hopefully get this stroke pain sorted, I’ve started looking looking back at how far I’ve come, and at moment it’s kind of keeping me in a more positive mood.
All the best with your continuing recovery
Hi sokeyjoey
Congratulations on surviving this far , the nhs signed me off as soon as i was using a quad stick so never seen an nhs consultant, had to pay privately.
Not had specific pain other than an over sensitive left leg all brainrelated.
Good luck.
I would be very interested to hear what the specialist tells you about the Central post stroke pain.i have also been diagnosed with this and have only been offered medication and now mirror box therapy for just the arm (I have a super tight rubber band feeling in the leg)