Is there anyone out there?

Nice to be inn contact with you David I thought was on my own. Message just disappeared and I had to find my way back again. I wont give up. Norma.

Hello Bruce. Thank you for your reply. I will try what you suggest but although I am able to speak it is not always very clear. My husband has difficulty in understanding me but perhaps it is convenient deafness!! It is good to know that people are getting access to the site. Has anyone else tried the ā€œ chatā€ site yet? Lilian

Hi David
Ischemic stroke nearly 6 years ago now. Turned everything upside down. Job collapsed 3 years ago not worked since and wonā€™t now. No prospects at 63 and disabled.
Re the beard, I have a very nice Braun trimmer and a daily once over keeps it tight, no head movement needed. Easier than shaving tho I do shave around the edges. Have had it for years, before it went grey so Not a new thing for me. The headshot angle is deceptive makes it look neater than perhaps it really is, but thanks.
I hope life is ok for you. I find ways of living with it after all this time some days better than others, still very restricted especially mobility wise, but I very changed my expectations in some ways now as I can see this is a long term change. I was fortunate to have been spared any serious cognitive damage at least, the mild impairments I did experience in the early days have mostly improved now. Itā€™s the physical stuff that gets me down at times, as previously I was a very active person and I do miss that.
I have great support from my family so things are ok. I know the stroke well now so Iā€™m not daunted by year7 coming up next year. It will be ok, Iā€™ve got lots of good things around me.
Have a good Christmas when it arrives
Best wishes
TONY

Dear Patricia

Well done for finding some relevance of the shield against my name. I am impressed.

I feel so inadequate with techy stuff. Yet I had a home PC many years before my friends/family . And lead the way at my workplace. Now I canā€™t get the hang of Apple nor Microsoft.

Best wishes
Colin

Hi, the right side of my thalamus was affected and I am not able to feel hot/ cold in my left hand soft fur feels sharp etc not sure if you are feeling similar things?

This site is very confisingnow

Still struggling to get accepted by new forum.
Deigh

Hi sounds similar. Do you look totally unaffected? People say to me ā€˜ oh youā€™ve been so luckyā€™ yet Iā€™m living with this heavy sensory feeling. Yes I know I am lucky but ā€¦ā€¦.

Hi Natalie yes I am the other side so itā€™s my right side affected. Different things feel strange but I struggle most with my leg and arm feeling very tight at times especially if Iā€™m stressed or even excited or tired. I find exercise does help but I also have fibromyalgia so pacing is a difficulty. I live in West Lothian Scotland and there arenā€™t any groups around.

Hi yes Iā€™m the same my skin on my hand literally feels too tight for my hand and two years on my left arm is spasming and become painfully tight offered Botox tablets but not ready for that yet, I swim 3 times a week and find this helps a lot they have just started me on pregabalin so Iā€™ll see if this improves things. I canā€™t use my left hand for temperature gaging baths etc. Iā€™m in Lincolnshire and tbh havenā€™t looked into groups. How long is it since your stroke?

Hi Tricia. I also look normal,in fact people always say I look well. I am not sure I believe them! I have similar problems with my right hand and leg. I still depend on my rollator for walking. I live in Cheshire and have yet to find a local group. I had a stroke three years ago. When did you ? Good to talk Love Lilian

Hi Lilian so great to find people in similar position to me. Mine was about 3-4 years ago and symptoms are still roughly the same. I was already on Pregabalin for Fibromyalgia. I didnā€™t realise how much they were helping until a few weeks ago there was a mix up in my prescription and I was without Pregabalin for4 days. Gosh didnā€™t realise how much it masked. I hope you are keeping well just now.
Hope to chat again. Tricia x

Hi Natalie itā€™s been about 3-4 years since my stroke.
I cope great most days then every few months or so I indulge in a little self pity and remind those close to me I did have a stroke. :joy:
How are you keeping now??

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Hello @Norma_Jean_K, nice to see you back here :smiley:

One of the biggest problems many of have faced is that comment that ā€˜you look wellā€™. It is meant with the kindest of reasons but all stroke victims resent it as though it says that we are inventing our problems. One friend of mine now always greets me with ā€œYou look terribleā€, but thats what fiends are for!
Deigh

1 Like

Iā€™ve noticed, around me, there are people who say, ā€œYou look wellā€, and there are people who ask, ā€œHow are you feeling today?ā€ - I prefer the latter.

I agree with Janeā€™s profile, it is very appropriate. I also like Rupsā€™ comment. What do others say in response to the comment ā€œ you look well ā€œ. I would be interested to know. Lilian

I tried to reply to your message Rups and couldnt Its nice to see you again I have been trying for weeks to get round this new site and am striggling with it. Norma.

Hello @Norma_Jean_K, weā€™ll all get the hang of it in time, and theyā€™ll make the appropriate changes when they see what works and what doesnā€™t. Hope you are okay, and good to hear from you.

I havent learnt how to put a new message on. With the heading. Tjanks for replying nice to hear from you. Norma