Is there anyone out there?

Colin , yes like most on here, I am sure , so appreciated your support. Thanks David

Yes I agree. Why is it that complicated… Loved it when we could just chat. Didn’t feel so alone!!! Glad you have responded though, bless you. Jane.

Hi all
If you are using a tablet for this site go to the drop down menu next to your icon/ picture and click mobile view when this has loaded on the top left of screen the drop down menu will give you the option of latest, choose this option.
I think this may help many of you with your much loved chats.
:crossed_fingers:

Hang on in there all, you will work this site out, just remember how much you have already overcome as a stroke survivor :clap::clap:

1 Like

Hi Colin, found my way back in at last. Trying to work out an easy way to see what is going on.
Nice summery weather here.
Deigh

Hello there. My name is Tricia. I tried the old site but never managed to get going as I’ve never come across someone who has had a thalamic stroke and I feel so alone. My symptoms are totally different in that I have lack of sensory feeling in my right side plus the usual memory loss trying to find words etc.

1 Like

Hello Tricia. Good morning. I don’t know what kind of stroke I had but it affected my right side. I lost all feeling in my right side but my memory has been unaffected. I am trying hard to get use in my right hand. It is really difficult. I use my left hand to type on my iPad very slowly! Let me know how you are. Love Lilian

1 Like

My cat is huge. 6kg. Frightful claws, But he has not once used them in anger indoors. He treats us two humans like his family.
Sooty adopted us not long after a stroke got me. What I loved is that he treated me as I am, no variation. He doesnt mind my disabilities.

I despair over this new version of the forum.

Nice to hear from you
Colin

Welcome back on board Tricia.
A stroke is a stroke. Mine is right lacuna, but all that means is the probable approx area in the brain. We all have different functions in different places, so the stroke will damage bits that are unique. No two strokes are the same. But we all share some common issues.
Strangely I had long term loss of feeling in both my lower legs, But after years of gentle persuasion the feet now work.

Memory banks are a dead loss. I try to just accept this loss,

So nice that you are back on board and well done for finding your way here. I cant work the site.

Colin

Dear Patricia

I really do not know what the shield means. I will be delighted to think of it as defeneder of the SS.
Now, if I could work out how the site works I could defend much more

Colin

Please can we borrow some of the NZ summery weather. Its the first November to have had a minus day. My records go back to 1998. I do live in a very sheltered spot in England. Less cold and very dry.

Colin

Hi Ann , Thanks David.

Hi Patricia, Thanks , I pad ! Considering updating my Samsung tablet, to I pad , don’t know if it is over the top & poss too complicated for me though ? Good talking David.

Hi Anthony, been having, bit of rest, for few weeks ! Cerebellar stroke 2.5 , years ago , poss similar to you ? Envious how neat your beard looks . 2 years after, decided, I couldn’t manage shaving, moving my head , is terrible for me , so decided to grow my lazy beard, no up keep , now & then, trimmer. Find with various, best just to adjust & accept. Good talking David.

Hi Rups , you wrapping up well , when outside , animals, orchard etc, how much land & animals ? I find I try to accept how I am & rather lazily, always interested in reading your research & others though.

Hello @David3, yes, the weather has become rather crisp, and I’m gathering wood every day for the burner. We have about 220 acres of natural woodland, pastures, and garden and orchard. We have ducks, geese, peacocks, pigs, sheep, chickens, cats, as well as, all the wildlife. I’ve just resurfaced from a fairly ghastly week, I suspect much of it has been due to acute nystagmus and blurred vision, but also just haven’t felt the hwyl to do much, and anxiety has crept in daily. Today, seems a little better though. At the moment, I am researching visual attention impairment to do with cerebellar stroke, but I don’t just research stroke things, I have a keen interest in history, so I have been steeped in Old English research over the past week. Hope all is well as can be with you.

Hi all. I’m just getting the hang of this site and, as many of you say, working out what to do is a bit tricky on this site! But I’m getting there… I’m coping with a laptop screen for 20-30 minutes and a month ago I wouldn’t have been able to stick it! Lovely to read your messages.

Hello Deigh, good to see you found your way onto the new site, it’s a bit confusing at times but we’re all learning together. Hope you are keeping well.
Ann

Hi @Steve50, great to hear your beginning to get to grips with the site and able to use your laptop for longer periods.

Hopefully you’ve made progress in all areas of your rehabilitation :slightly_smiling_face:

Hi Lilian - sounds like your stroke is similar to mine, loss of right arm and leg but speech and memory OK. In which case, can I recommend speaking your messages instead of typing? My phone is fairly good at transcribing what I dictate to it, although I always have to check what it has written for howlers. I always wondered why there was a microphone symbol next to the box for typing text messages… There is also something similar on my Windows laptop, but not as good. I have been told there is a device that can help us use the hand if you can get access:
AMADEO®: The pioneer in Finger-Hand-Rehabilitation| Tyrotherapy - has anyone used one?
Best wishes, Bruce