Clopidogrel

Hi Jane, just a thought. It is possible to copy and paste comments (or parts of comments) in to documents such as word which you could then print out and give to your family - they may be more likely to read a hard copy than visit the site. You can also print out leaflets from the site. Regards, Alfie.

I am also on the same combination. Initially I was prescribed 80mg atorvastatin daily, but within in weeks my liver function tests went throught the roof and my joints seized up . I felt awful. So the dose has been reduced to 20mg daily and I  am so much better. I haven't experienced any side effects with the Clopidogrel (long may that last )

Dear Nicabella

Flattery will get you anywhere.

I believe i had several TIAs. They were migraines but accompanied with an hour or two when i couldnt fathom out where i was, who i was nor what i was doing. I rapidly learnt to take an aspirin then sit with eyes closed. The horrible loss of sense then left and i had a sharp headache. 
a few Tias can be a lot worse but the key is that they are transient. 

I have bad eyes, so had a lot of eye tests and i haven't heard of identifying a stroke via the eyes. The current testing machines are so high tech, but nothing has shown up.

having laser for cateracts later this month.

the only problem for Mum is if they seriously think its a fore runner for a full stroke.

Not sure what can be done if they do an MRi. Might put minds at rest.

whatever could you have done to help hubby ? The inly thing is if you could have got him into hospital during the four hour 

window. Perhaps you did ?

 

i think Sooty Oscarthemagnificent adopted us in late 2017. I love him to bits and he is my constant companion. He has made the lockdowns much more meaningful. He is our first pet.

there are some really fabulous sheds around. A woodburning stove would make you very cosy.???

colin

Thank you so much for the response. I'll give this a try and also contact my GP re the PPI Drugs. I actually challenged the hospital discharge consultant as someone said that Omeprazole and Clopidogrel don't really mix, but they still left me on Omeprazole. Hopefully this might be the answer as I can't continue without some exercise. 

Hi Colin, good evening ?‍♀️.  My husband's stroke occurred 2 and a half weeks after heart surgery to replace the mitral valve.  Whilst he was in hospital, (Papworth), post-op, A-Fib was mentioned, which meant absolutely nothing to me at the time.  When he had a mitral valve repair in 2009, he was put on Warfarin for 4 weeks post-op and was absolutely fine.  In 2017 however, he was not on Warfarin as the hispital protocols had changed.  When he collapsed in 2017, I had no idea what was wrong. Our local hospital treated him as a cardiac patient, with possible sepsis (buzzword at the time); whilst in A&E, a junior doctor said to me that she thought he'd suffered a stroke, but the stroke nurse said "no".  That was the point at which I could have been more assertive if I'd had any idea about stroke.  Not sure if it would have made a massive difference, but medication could have started if he'd been scanned at that time, and a neurologist had diagnosed stroke.  He later told me that he knew he'd had a stroke, but because he couldn't speak he couldn't let us know - how awful.  I just wonder if I could have made a difference in getting a faster diagnosis, rather than the 5 days it actually took to get an MRI scan which identified the stroke.  I can't turn the clock back, and I don't let it get to me ....... much!  

Trying to remain positive about the puppy, everyone seems to love him, except me!!  I tolerate him, and allow him to live in my house, but NOT to sit on the sofa!!  As he has rendered me utterly sleep deprived, I'm now off to bed!!  Night, night ?, and best wishes to Oscar xx

 

 

Dear Nicabella

there is a 4 hour window of opportunity to use some chemicals to stop some of the strokeeffects.  So no way would the days of delay made that much difference. I too knew  I had  had a stroke, but for the life of me i couldnt fathom how i knew. 
i didnt feel bad at all. I could think straight and speak. Just paralysed. All the difficulties started less than an hour later. 
 

last May i had open heart AVR and they got me to stop taking blood thinners. 
the fatigue has started up again. I dont know whether thats from heart op or from stroke. In August 2020 the fatigue had gone. What wonderful days. I was slowly building up after the heart op, but progress was so nice. Then it all crashed. I got sciatica which slowed me up for a while, but sciatica has gone and i am still struggling big time. So exhausted. And walking has crashed. One mile maximum. And concentration has gone. 
 

well done for setting the puppy boundaries. Dogs respect a strong leader for his little pack.personally i would not want a dog. Our cat adopted us. He is allowed to go anywhere except the kitchen tops and units.

last night he woke us at 3.30 and i have to deal with him. So i slept on the sofa. He joined me on said sofa and slept through until 7.45. He wouldnt go out as it was raining and windy. But it wasnt cold so the sofa was fine. Slept rather well.

he is a big cat. I cant lift him at all.  i adore him beyond all reason. He is gentle and very affectionate. Actually, he is probably a small puma. At the moment he is keen to show me immense affection whilst i attempt to make my bed. I will have to make the bed later.

ttfn

colin

Hi, I had my stroke 10 weeks ago and am now on clopidogrel and rosuvastatin. I take clopi just before breakfast and rosuvastatin just before bed. I get a few dizzy/lightheaded spells but nothing too worrying...but I now get awful vertigo when I'm lying down which makes trying to get to sleep a nightmare. 
Could the medication and/or the times I take them be to blame ? I noticed that one person successfully changed their clopi time to after lunch...

I swapped mine to BP after breakfast Losartan, Clopi at 2pm so have already eaten lunch, Rosuvastatin at 7pm ish after evening meal.  I used to take Clopi on a morning and felt awful but swapping them around and spacing them through the day after food has worked for me.  I also have to avoid cheese which I only have once in a blue moon.  Yesterday I had a ham and the last cheese slice of Edam in the pack that my husband has for sandwiches for work.  Today, I'm a bit floaty and worse when I lay down.  No one to blame for that one but me I'm afraid!

Hi maybe I will try that I take mine all before I get up so on a empty stomach,good idea thankyou .

I take my clopidogrel just after breakfast. I'm also on Lanzoprasole which is supposed to stop it harming my stomach. I have to take that on an empty stomach half an hour before food. You'll just have to try what works best for you.

Think I will try after breakfast with clopi lanzoprolo I will only take for a short while as it's not good to keep taking ...pippy 

Thanks, yes I've decided to take clopi after breakfast (instead of just before) and my rosuvastatin straight after dinner rather than just before bed. I'm hoping that this will reduce the dizziness I experience at night. Crossing fingers! I'm seeing my physio tomorrow morning so will discuss this further with her. 

Stop Press - I was prescribed betahistine to combat my vertigo (it affects me when I'm lying down with my eyes closed) Does anybody else have any experience of this medication ? Does it work ? 

Yes, I have had experience with it. I was misdiagnosed with BPPV (Vertigo) when over a period I was actually have TIAs, about six of them. I was prescribed betahistine. The medication for me did nothing for the kind of dizziness I had, that's why I got suspicious after three weeks of still having "vertigo" and began pressing my GP. BPPV should only last a few weeks I believe. I hope it works for you. I also recommend proprioceptive eye exercises, they have really been helping me. 

So sorry you were misdiagnosed initially. When I had my stroke, I spoke to a doctor who said it sounded like vertigo but the fact that I'd also mentioned that my face was numb made him hesitate and he recommended I call an ambulance asap! I'm so glad I did. Now, after 10 weeks, the dizziness seems to be getting worse and my physio recommends speaking to the hospital about a review and more specialist physiotherapy. 

The hospital A&E said mine was vertigo at first but I couldn't walk couldn't see could just about sit up we refused to go home so they sent me for CT scan which confirmed a stroke ,6weeks ago now ...so glad I found the voice to refuse to go home ....pippy

So glad you stood your ground ! I'm 10 weeks in now and was told yesterday by one of the hospital consultants who treated me that the vertigo I'm now experiencing is just that and nothing to do with the stroke I had ! In fact he told me that I've recovered from the stroke - which does not tally with how I'm feeling at all and I'm rather confused. Anyway he said he'd refer me to an ENT specialist to help me with the vertigo so hopefully I'll feel better soon. 

Hi Pam I still have dizzy spells ,and was told the oppersite it's the stroke ,my stroke nurse told me ,sometimes I wonder who's right but at the end of the day no one knows our bodies like we do ourselves,drink plenty of water and try not to focus on the dizzyness and be positive it will go before you know it...dizzy days are far less now ,take care happy weekend ...pippy ...

Hello Pam,

I still have dizziness, seven months on, especially if I am crouching or sitting. Even with my eyes shut in bed, if I move I feel weirdly off-balance, like I am on a boat. I believe this is to do with a kinaesthetic  impairment that upsets my equilibrium. Sometimes it is worse and sometimes it doesn't affect me so much. I don't feel like the room is spinning, I just feel not quite grounded, like everything is a bit wonky. A good exercise used to treat vertigo is gaze stabilisation exercises, it's used for general BPPV but my stroke physio also recommended I try it as well. I hope you get some relief.

My hospital consultant says he'll refer me to an ENT specialist to help me deal with the vertigo but ironically it's not so bad now (famous last words). But I still experience woozy spells a lot of the time and it bothers me that he suggested that I'd now recovered from my stroke when I clearly haven't ! All I've 'recovered' is my balance and mobility but I'm far from feeling back to normal.