That sounds very interesting. I think we could work something out.
Sorry to have missed you. Things are chaotic, only just starting up.
I’m putting up another session for 7.00pm this evening.
You should have a notification.
You are very welcome to join that, though I understand if it isn’t convenient.
I am just firing off random meetings to get some interest. Things should settle down to a routine eventually.
Meetings have been very small, I’ve only had one or two takers so far. It is nigh impossible to get a time that suits everyone.
I think part of the issue will be finding times that suit members of this forum and it may be that there will be people who prefer daytime and others who prefer early evening. But to offer every now and then odd slots will be good
I’m thinking in terms of three separate areas, with possibly different groups of members.
Day time, evening and weekend. I’ll keep hitting those and see what results come up. Eventually I will slow down and hopefully find groups of regulars who will get a meeting maybe weekly or fortnightly.
Too many meetings will just produce bored visitors. I think there is a fine line to be discovered concerning frequency.
That is for the future. For now stimulating some interest is where it is at.
If you join the group you will get notification of meetings. You are welcome to join any or all as you wish. There are no requirements, we just hope you have a good experience.
Could you add me? I haven’t been in touch with other stroke groups but have been on the forum. Would be nice to see a few of you sometime. Local stroke group is a weekday that I can’t get to as I work full time now.
At that last Zoom session we experienced a remarkable, never to be forgotten, virtual event.
Anne managed to create a truly unique impression, on the screen in front of us.
She materialised as a very lifelike Halloween vampire and we were for a moment terrorized as she hung, laughing, upside down before us.
As is always the case with these otherworldly phenomena, though the camera was running during the event, no actual footage remains of what we actually saw.
I’m sure this alone is an indication of spooky goings on and if you ask the others there at the time I know they will confirm my story.
To investigate further we immediately followed with a complete second session, but everything appeared normal. Of course we now know what ‘normal’ really means.
If you feel inclined to join this group it couldn’t be easier.
Find the Groups button then look for Zoom Open Group and press Join.
No complicated procedure, pressing the Join button instantly makes you a member of the group.
You will then receive details of upcoming sessions.
You can chose to join any meeting, no formalities, we are glad to welcome you.
This is a new group, just finding its feet. Please forgive us when scheduling gets a bit random.
Whatever else, we want you to have a good experience in our meetings. They are informal. You are invited to take part and meet other MyStrokeGuide Forum members.
I’ll leave Bobby to give you details of his wonderful ZOG and I’ll also point out this link to a cafe that will be this Thursday afternoon .
There are changes to the arrangements (the young persons is no more, the carers is paused and more)
this Thursday pm will happen and I’ll update that post at some time .
@Bobbi would you like to have a conversation about combining our efforts/coordinating? Possibly even merging or something.
I think things with you and I both running cafes works absolutely perfectly I’ve enjoyed in attending yours, you’re always welcome at mine but I think the ‘yours’ and ‘mine’ rather than ‘ours’ is worth at least conversation. Maybe it’s worth also joining the stroke group network that the stroke association runs - personally I think would be a tour d’force
An interesting idea, Simon. Looks like you have a lot going on there.
I’m down to a couple of regulars now. The number of people who come to my sessions have reduced considerably as they moved on, started work, and so on.
Reading through the forum it does look like there are a few new faces who might be interested in a meet up.
ZOG is open and independent, it has no affiliation with any group or organisation and can do what I and its members want it to do. I do request observance of MyStrokeGuide Forum rules, but nothing more.
I think I’m offering something that has been valuable to folk affected by stroke and will continue in this way as long as there is interest.
I can put up a session right now, this very minute, or create a more structured offering with regular appearances. Its largely up to whatever and whoever requires it.
I have run one to one sessions for one or two so they could get used to having a Zoom meeting with no challenges.
All that you say and do I fully appreciate and agree with and have done the same.
I run 121 sessions for several people. And I’m happy to do it whenever anybody asks. I’ve also made the link available that people can use themselves anytime.
To be candid I have found the stroke association more of a drain and a constraint than helpful or even pleasant (there is much that I won’t put in a public forum)
so Lea & I will be moving away from that role -although I retain other volunteer roles such as the one 2 one phone conversations in the Here For You service, and also the group I can’t remember the name of that workshops the stroke associations approach to partnerships with other organisations.
There is a little uncertainty about whether the lottery funded zoom account I use is one they will now restrict but the bitly links are mine so I can easily remap them.
Should it be necessary I’ll simply buy a zoom subscription and I will offer it’s used to you without obligation in any respect so if you want to run entirely independents of groups all that would happen is your 40 minute limit would be removed. You would be free to do everything else unchanged but I wonder whether our cooperation might prove beneficial to those we effectively offer service to?
I think if we teamed up We would meet stroke group network preferences to not be a ‘one man band’ and there might arguably be a few benefits then; You and I are both 80% of the way into the SGN with none of the benefits at the moment
No rush, no intention to compromise any element of your current freedoms, happy with any form of collaboration or just the current parallel coexistence - I can see the appeal in that too
