Hi all
This thread arose during my ‘absence’. I’ve just seen it due to it being bumped by bobby’s posting about sliding off the bed and having excellent tomato soup with cheese toasties
The original poster of the topic has not been back since a couple of days after joining - but may well get a notification now and return ?
There is much that I relate to amongst all your contributions - thank you.
One of the thoughts that I return to many times when reading posts is that we all have rates of progress.
Rate of progress is different for different aspects of our recovery whether it be emotional, muscle control, return of sensations, upper or lower limb etc etc
Also we each have a different sensitivity to what knocks us off course; a slight tummy bug maybe just that or maybe the trigger for debilitating fatigue again and 2ndry or 3ary impacts .
Progress runs in fits and starts and goes backwards too
Worse one has to have faith, has to learn to persevere when no progress is visible because like the baby analogy above - progress is going on invisibly until enough components of reached a state where they combine and the capability is revealed.
It needs faith that is not provided by the therapy professionals IME
When all this is considered then the far-too-common medical statements about “you can only make progress in 6 months”, “you’ve reached the plateau no point in trying anymore” and the great truth about ”use it or lose it" - well then I’m depressed on behalf of others. Because it becomes a self-fulfilling prophecy .
I thought as I read
and
Highlight the real elephant - it’s the emotional and psychological acceptance of one’s situation and then the benchmarking of ones capabilities and then the work without evidence and just faith until some progress as being seen, and then the resilience to overcome the setbacks…
And it’s this last paragraph that this community paints grey or punctures to deflate or perhaps it should be paint pink? by providing examples not of the rate of progress but of the inevitability of effort being repaid in capability growth
Thank you all for providing me with support by encouraging when progress with absent and celebrating when milestone were visible over the past year… and in anticipation of it continuing next year
Ciao
Simon