My husband had a Stroke on Christmas Day

Hi Yvie and welcome to the forum, you’ve come to the right place.
You must be going through all the emotions right now - it’s such a worrying time for you, but I’m glad you’ve found the forum. The guys on here are brilliant and have amazing coping strategies and insights that will be helpful in the coming days, weeks and months.

Sending you and your husband all the best :slightly_smiling_face:

4 Likes

you are not alone. Keep a record to convince yourself of how far you have come. There will be progress and setbacks. Be of good coutage

4 Likes

@EmmaT1974 and @Yvie

Really glad to hear your husbands are showing signs that some things are recovering :+1::grinning:

I hope you can turn that into some comfort for yourself. I think you got the message we tried to deliver earlier about “your own resilience is a foundation stone and you must protect it”.

Other aspects of that resilience that will most probably be in your future :frowning:
Some things won’t recover Or will recover slowly with fits and starts.

The journey is not all straightforwards:(
Look out for both of those because they are part of the journey and should not disrupt your newly forming ability to cope

You will have some transitions that some forward thinking may smooth. Hospital to home is a big one and may require beds downstairs and or grab rails by toilets and showers - these are conversations to have with an occupational therapist. Application for PIP or other benefits

All the subjects/ information has been discussed on here before so you will find it by searching or by asking :slight_smile:

Ciao
Simon

4 Likes

Dear Yvie,
My heart goes out to you as my husband had a stroke in October 2022. It is a life changing event as you know and one that takes a lot of acceptance over time from both of you. I have cried many tears for him and myself too! I have found that one step at a time is the only way. My husband was not able to walk when he came home but with intensive physio which he works hard at, he is now able to walk slowly using quad stick. He has weakness on the right side and has learnt to write with the right. I found the book “My year off, rediscovering life after stroke” by Robert McCrum is very comforting. I wish you both well and remember life will improve. You will find ways to cope along with the expertise and kindness of others.

5 Likes

Oh @SimonInEdinburgh i had no idea! Why on earth was that?! I found your posts so very supportive and helpful!

I will do a proper update soon as if I can help anyone else it would be a privilege.

2 Likes

Well the accusation was “No constructive purpose to their actions other than creating dissent within the community”

Why the accusation was made has never been explained let alone justified. Attempts to use the complaints process where completely unsatisfactory. I was absent from a month without any prior warnings - there wasn’t any grounds that would cause issuing any.

There’s a long tale, with no understanding of the effects caused or the failure to translate published policy and values into operational procedures & accountability - I’m waiting for a chance to raise to the trustees at some point.

Yes please do share your stories because as this thread proves other people are travelling a very similar road and facing the same fear of the unknown that we all do when we arrive on it

Ciao
Simon

2 Likes

Hi @Jill1
I’m not sure if welcome is really appropriate since you’ve been here reading for a year! But I’ll say it anyway as this is the first time you’ve posted .

So welcome to the writing members :slight_smile:

I’m sure you’re journey would be of interest and some comfort to others :slight_smile: Perhaps you will consider sharing some of the high points?

Thanks for the book recommendation

Ciao
Simon

2 Likes

@Jill1 i see you have been a member for a while but just wanted to say hi as it is your first post.

Hope your husband is getting on ok now & that you are also managing well.

Take care.

Ann

2 Likes

@Jill1 just popped in to welcome you to the forum :slightly_smiling_face: I hope your husband continues to make such marked improvements and wish you both a Happy New Year :grin:

2 Likes

@Yvie I am so sorry to read your post, it is indeed a hard journey, especially in the beginning you are learning such a lot. Main thing everyone’s stroke is different even though many problems struggles are shared.
I hope he gets his strength back on his weak side.
Keep the faith, slowly slowly wins the race.

You will adjust to a new way of living which CAN still have joy, happiness, and enjoyment just not quite the same. It will be hard but stay positive.
Sending my very best wishes. Julie

5 Likes

Maybe my response might help. I had a stroke 5 months ago - 2 months before my 89th birthday. I was in hospital for a little over two weeks. At first I was paralysed all down the right side, but I was up and walking with a frame within a little over a week. Throughout my stay in hospital I was seen every day by an Occupational Therapist/Therapist who helped me to get moving.

By the time I was sent home I was able to walk with sticks. One of my greatest problems was with my right arm which felt dead from the elbow to the fingers, and I had a very strong shooting pains down the arm to the hands. These were so painful when I lay down that I couldn’t sleep, and I was given Tramadol to help with the pain. However, after about a week I came off this, as it tended to knock me out during the day.

During the first two weeks at home I was visited on a daily basis by one or other member of an Occupational Therapy team who advised me on such simple things as how to dress, to shower, to eat and so on. At times this can be highly frustrating, as initially all you want is help - not simply to be told how to do things. However, it helped to know that the problems I was facing were faced by so many others. I also learnt that the total exhaustion that I felt almost every day at some time or other was a problem faced by most post-stroke victims - often for months. I learnt to accept this and tried to set aside times when I could lie down and regain some energy.

After two weeks the Therapists stopped coming, but I felt far removed from being able to cope. However, I was lucky in that a long-time friend took it on herself to organise things for me. Bearing in mind that she had her own home to look after and at 83 had her own health problems to cope with, this was a major commitment. She began by making meals for me and by organising private carers to come to my house for 2 hours every morning to help me cope during my first month at home.

She also arranged for me to have private treatment on 3 afternoons each week. These were with an Acupuncturist who gave me very deep massages and acupuncture sessions, a Quijong Specialist who introduced me to a range of exercises for my arm and hands (but subsequently for the whole body), and a Scenar Treatment Specialist who tracked and stimulated the functioning of the nervous system not only in the dead arm and hands but also in related parts of the body. (Scenar Treatment is little known in this country, but is widely used in hospitals throughout Russia. It was originally developed to help astronauts during their trips into space and in their recovery after landing). I felt that all three treatments played a major part in my recovery over tha past 3 months.

One of the things that helped me during the first 3 months back home was the fact that the treatments helped me to be aware of the progress I was making - nothing big, but minor improvements that I could see from week to week. It was 3 months before the pain in my hands and arm disappeared, but I was able to see how it progressed from pain from the elbow all the way down to the fingers, then to pain from the wrist down to the fingers, and finally to pain only in the fingers - finally disappearing after a little over 3 months.

Over the first 3 months I felt very frustrated by the fact that I found domestic tasks extremely difficult. I was only able to do the simplest of cooking, and was extremely clumsy trying to do simple things like drying up. I also found it frustrating that I was dependent on others to take me around. However, the fact that I could see the minor improvements I was making week by week helped me to remain positive.

After 4 months my movements had improved considerably. I was able to walk for about 30 minutes with the help of sticks, movement in my hand was still limited, but it had improved to the point where I was able to drive again - giving me an enormous boost.

Now at the end of month five I feel I am well on my way to being more like the person I was before the stroke. I still can’t write properly, which made writing Christmas Cards extremely difficult, but I am striving bit by bit to improve it. In the end I will accept the limitations I am left with, but I will continue to strive to get the best outcome I can get.

I realise that compared with many I have been very fortunate. However, I had a great role model to guide me on my way - my brother in law. At the age of 42 he had a major aneurism at the back of his head. He was badly crippled down one side and couldn’t speak during the first year following his stroke. We never knew during those early months whether he was able to understand what we were saying. However, his wife committed herself to his progress, and by the third year he was talking reasonably clearly and was making good use of a computer. He is still paralysed down one side, but he is able to walk with sticks, is able to converse well, has a good life and makes the best of what he has achieved. The lesson I learnt from him was to ‘never give up trying to improve and to be content with what you finally achieve’.

I hope that this response might be helpful.

Reg

5 Likes

Welcome to the club Reg.
As you say compared with some here you’ve had a fortunate journey post stroke :slight_smile:
I guess you’ve also had to work hard for the rewards.
Thanks for telling your story :slight_smile:

2 Likes

@rfmelton hi & welcome to the forum. Thank you for sharing your story. You’re an inspiration achieving so much in a relatively short time frame. I’m guessing much determination & plenty of hard work went into it. No doubt there were many frustrations along the way but the results have been worth it i’m sure.

Best wishes

Ann

2 Likes

@rfmelton, I loved your post, your improvements and your encouragement give so much hope to others and are cause for celebration so :partying_face: :partying_face: :partying_face: :clap: :clap: :clap: :people_hugging:

And a warm welcome to the forum too :blush:

2 Likes

…Yvie,

Just had my 2nd stroke recently and I’m learning my new life. All I can say for now (I haven’t done my Newby post yet…but will) is that I’m thinking about you in your situation and I wish you and your husband all the luck in the whole wide world. My wife is also an Evie (Yvie) and without good people like you and others on this excellent site things would a lot lot harder. I’m not particulary religious but I pray for you.

4 Likes

Hi @Spike7886
Sorry you’ve joined us but now you’re here welcome.

I guess if this is your second stroke perhaps you know something of what it’s all about and the adjustments that you and family have to make? Not entirely sure if it’s relevant but we put stuff that newcomers find helpful in a welcome post

Looking forward to reading your “newbie post” (and anything else that you feel like contributing :slight_smile: )

Ciao
Simon

2 Likes

@Spike7886 just popping by to say hi & welcome to the forum. Sorry to hear you’ve had a 2nd stroke. I bet it’s frustrating when you’ve already been through it & have to go through some / all the same things again.

Wishing you all the best for your recovery journey.

Best wishes

Ann

2 Likes

@Spike7886 Just wanted to say hi and welcome you to the forum. Though your input on stroke recovery will be invaluable to so many on here, I hope you continue to find the help and support you need going forward on this second journey of recovery. :people_hugging:

1 Like

just want to say hi , and sorry to read that youve had a 2nd stroke, having 1 stroke isbad enough , i cant imagine having a 2nd, keep fighting all the time , best wishes Dave

3 Likes

Hi y is what a rotten Xmas you have both had .i was in hospital over Xmas a year ago and i still remember those feelings of being able to do so little. I’ve worked and worked at all my exercises I was given by physios . I do them every day . Ivefinally realised that recovery is a long slow process but looking back I can see the progress have made. My family have been brilliant ! I’m sure , together, you will get through this tough journey together. Remember you will be no help to him if you are tired and worn out yourself . As Ann has said be sure to get some “ me” time and re energise your batteries. As soon as he feels ready gat him to set himself small goals and celebrate when he can achieve hem ! Make sure they are small ! Get him to join this forum I have benefits so much from talking to people on here. They are truly great and tell the truth! Also feel free to talk to us anytime. We aim to help as much as we can . Good luck on the journey to come. Please send your husband our best regards suzywong xx

M

3 Likes