Maybe my response might help. I had a stroke 5 months ago - 2 months before my 89th birthday. I was in hospital for a little over two weeks. At first I was paralysed all down the right side, but I was up and walking with a frame within a little over a week. Throughout my stay in hospital I was seen every day by an Occupational Therapist/Therapist who helped me to get moving.
By the time I was sent home I was able to walk with sticks. One of my greatest problems was with my right arm which felt dead from the elbow to the fingers, and I had a very strong shooting pains down the arm to the hands. These were so painful when I lay down that I couldn’t sleep, and I was given Tramadol to help with the pain. However, after about a week I came off this, as it tended to knock me out during the day.
During the first two weeks at home I was visited on a daily basis by one or other member of an Occupational Therapy team who advised me on such simple things as how to dress, to shower, to eat and so on. At times this can be highly frustrating, as initially all you want is help - not simply to be told how to do things. However, it helped to know that the problems I was facing were faced by so many others. I also learnt that the total exhaustion that I felt almost every day at some time or other was a problem faced by most post-stroke victims - often for months. I learnt to accept this and tried to set aside times when I could lie down and regain some energy.
After two weeks the Therapists stopped coming, but I felt far removed from being able to cope. However, I was lucky in that a long-time friend took it on herself to organise things for me. Bearing in mind that she had her own home to look after and at 83 had her own health problems to cope with, this was a major commitment. She began by making meals for me and by organising private carers to come to my house for 2 hours every morning to help me cope during my first month at home.
She also arranged for me to have private treatment on 3 afternoons each week. These were with an Acupuncturist who gave me very deep massages and acupuncture sessions, a Quijong Specialist who introduced me to a range of exercises for my arm and hands (but subsequently for the whole body), and a Scenar Treatment Specialist who tracked and stimulated the functioning of the nervous system not only in the dead arm and hands but also in related parts of the body. (Scenar Treatment is little known in this country, but is widely used in hospitals throughout Russia. It was originally developed to help astronauts during their trips into space and in their recovery after landing). I felt that all three treatments played a major part in my recovery over tha past 3 months.
One of the things that helped me during the first 3 months back home was the fact that the treatments helped me to be aware of the progress I was making - nothing big, but minor improvements that I could see from week to week. It was 3 months before the pain in my hands and arm disappeared, but I was able to see how it progressed from pain from the elbow all the way down to the fingers, then to pain from the wrist down to the fingers, and finally to pain only in the fingers - finally disappearing after a little over 3 months.
Over the first 3 months I felt very frustrated by the fact that I found domestic tasks extremely difficult. I was only able to do the simplest of cooking, and was extremely clumsy trying to do simple things like drying up. I also found it frustrating that I was dependent on others to take me around. However, the fact that I could see the minor improvements I was making week by week helped me to remain positive.
After 4 months my movements had improved considerably. I was able to walk for about 30 minutes with the help of sticks, movement in my hand was still limited, but it had improved to the point where I was able to drive again - giving me an enormous boost.
Now at the end of month five I feel I am well on my way to being more like the person I was before the stroke. I still can’t write properly, which made writing Christmas Cards extremely difficult, but I am striving bit by bit to improve it. In the end I will accept the limitations I am left with, but I will continue to strive to get the best outcome I can get.
I realise that compared with many I have been very fortunate. However, I had a great role model to guide me on my way - my brother in law. At the age of 42 he had a major aneurism at the back of his head. He was badly crippled down one side and couldn’t speak during the first year following his stroke. We never knew during those early months whether he was able to understand what we were saying. However, his wife committed herself to his progress, and by the third year he was talking reasonably clearly and was making good use of a computer. He is still paralysed down one side, but he is able to walk with sticks, is able to converse well, has a good life and makes the best of what he has achieved. The lesson I learnt from him was to ‘never give up trying to improve and to be content with what you finally achieve’.
I hope that this response might be helpful.
Reg