Hi @Maggers … you could always put a complaint into PALS about the Hospital’s behaviour, if no one speaks up then nothing changes. They should intervene on your behalf with being discharged without your knowledge etc. wishing you luck, keep well Anne
Maggers, you are welcome,My nonsense advice comes from my fed up and P$%%ED off state of mind and the inability of the so-called professional people wo are not doing their jobs properly, the information I gave you is from all the brick walls ive been banging my head against for the last 6 years.
I too would not stick up for myself , but you get to a state where you think BO&&$£KS to this , am going to do something about this.
I would like to suggest to you , if your mental health starts r has already started to deteriote, Contact a mental health charity called PLATFORM 1, LOOK on the internet for this group, they have councillors that you can go and see for as long as you want and or need them, they will be able to help you with everything I have said in my previous post to you. a big manly hug to you if you need its.
I too was declined a referral. After my stroke they found a 9cm aneurism in my brain, which was supposed to be monitored every couple of months to see if it had grown. Covid hit and they monitored me over the phone ( must have some special phone that can see into my head!!!) and had the audacity to say it wasn’t growing. Anyway, had some problems so had a telephone call with G.P. who referred me only to have it declined, asked for a re referral, same thing. Have complained and complained, buy to no avail, so have given up now, have got everything written down, so if the aneurism gets me, my husband can sue!!!
Anyway keep your chin up, you are not alone.
Oh Loshy, It is unbelievable!!!
Chin up that’s all I can say.
I hear you Z but all these long written complaints when your feeling ill just make matters worse for people like us. Ive done it once with GP surgery at start of my stroke ended up with an apology but has made my fear and upset worse since. Besides which I think they know the NHS has collapsed and fending things off with long complaints procedures. The system is cruel and unkind and because of that the people working in it have to protect themselves by becoming cruel and unkind. and those who still working in the system with any kind of moral and social base are prospective whistleblowers shafted by management.
Disgusting and disgraceful Such a cruel and unkind system as Im only beginning to discover.
Good on you for taping that conversation. Just to let you know if you had gone to prison I would have baked you a cake with a file in
I will look that group up Jonty thanks. Hope I can become empowered as you one day. At moment I cant even speak to anyone about my experiences still at the uncontrollable crying stage when I try and talk about it Thats why I like this forum.
Sorry for late reply Nicky Im still struggling and not even sure Using this site properly as my replys keep popping up all over the place.
Hi Maggers I am about 2 1/2 years out from my stroke. I feel as though I have gone backwards in the last year since I stopped taking statins. I still feel like I’m going backwards. Sometimes I feel as though it’s two steps forward and one or two steps back. I read a book about Statins and never looked back. BTW, my one daughter and her husband are both doctors nearly 3,000 miles away. My four sisters are close by me. As is my second daughter.
I was going through a divorce when I was diagnosed and couldn’t wait to leave the hospital. I had just moved into a new house 2 weeks earlier. Bad timing.
My GP retired about a year ago so I’m with a new PCP. My volume of O2 went below average about 1 week after I started taking rosuvastatin but since then, I have stopped it, and it has gone back above average. Hard to believe I stood on a winners platform for a triathlon. I participated in 2015, now this.
@Rhfollett just popping by to say hi & welcome to the forum.
Wow, you were a triathlete. I’m impressed. I love the triathlon but only watching.
@Rhfollett welcome to the forum