Looking for some advice on my mums stroke recovery. She has been out of hospital for 4 months and is having private physio every 2 weeks plus practicising physio at home, but progress has slowed / plateaued a bit. She is still receiving full time care from my sister and I, and whilst she’s doing a bit of walking on the walker, its nowhere near close to moving around independently. She has a wheelchair but the flat is not great for manoeuvring a wheelchair around.
She is becoming more frustrated and sometimes seems completely hopeless about the future - to be honest I don’t blame her as she is waiting on a lot of things and it feels like we are completely at the mercy of the council / NHS / HMRC etc. Waiting months for the council to make adjustments to her flat, still waiting after months for PIP to be awarded and also almost 4 months on we haven’t heard a word from the hospital physio/OT team and her next ‘check-up’ isn’t until December.
I guess I’m looking for some advice about what we can do to make this easier for her / speed up this process - I really hate seeing her lose motivation and hope but I totally get it as it’s almost impossible when you’re waiting on the relevant organisations to pull their finger out and actually do something.
It really feels like we’ve been left out in the wilderness with no help.
Any advice welcome on how to best cope and make this process easier for her, plus also how we are to cope as full time carers.