What are the Unmet Needs of Young Stroke? The Perspectives of Young Stroke Survivors, Stroke Carers and Stroke Clinicians

About the study

Did you experience stroke at a young age? Or perhaps you care for someone who did?

Take part in our research study examining the specific unseen and unmet needs of young stroke survivors as viewed by different individuals in the stroke community. This includes young stroke survivors, those that act as stroke carers (spouses, family, friends etc.) and stroke clinicians. The insight provided by these groups may be invaluable for future stroke research! So, if you have the time, please complete our 10-15 minute online questionnaire and if wish to discuss your experience in more detail, you can also take part in a one-to-one interview.

The aim of this study is to uncover specific unseen and unmet needs of young stroke as identified by young stroke survivors, stroke carers and stroke clinicians. There have been studies detailing various unmet needs of young stroke survivors such as lack of familial and financial support but research in this area is limited. This is of particular importance as over 25% of stroke occurrence happens before the age of 60 and this is increasing. By addressing young stroke survivors, stroke carers and stroke clinicians, we wish to obtain your opinions on the specific unseen and unmet needs of young stroke.

Inclusion criteria (those who can take part)

  • Aged between 18 and 65 years old
  • Clinically diagnosed as having (or caring for someone) an ischaemic or haemorrhagic stroke
  • Must be a resident of the UK or Republic of Ireland

What will participants have to do?

You will be asked to complete an online questionnaire. It will take approximately 15-20 minutes to complete.

Once you have completed the questionnaire, there will be an option for you to take part in the second part of this study, the online interview. If you are interested, you will be sent another information sheet and consent form for the next part of the study.

Here is the link to the questionnaire: https://ulsterhealth.eu.qualtrics.com/jfe/form/SV_cZprY5MX6DUqrMG

Contact for enquiries:

If you have any questions or require further information regarding the study, please contact the researchers below:

Oisín Cleary, PhD Researcher: cleary-o2@ulster.ac.uk

Dr. Niamh Kennedy, Supervisor: n.kennedy@ulster.ac.uk