When I was released from the hospital after having a blod clot stroke, they told me I must schedule 3 appointments within the first week of my release: my GP, a cardiologist and a neurologist, which I did. The cardiologist ran a lot of tests and had me wear a Holter for a day to monitor my heart. (He said if they didn't find anything, they might need to imlant a small wearable monitor for several years or months to see if they could pick anything up.) Luckily, after a day wearing the wearable monitor, it was found I had atrial fibulation (afib), which caused the stroke. I had never felt anything and would never have known had I not seen the cardiologist. Since then, I take Eliquis, an anti-coagulant and dilitiazem (Cartia) which stopped the afib. It gives me much peace of mind to have discovered the cause of the stroke. I agree with you about how important it is to pursue finding the cause of the stroke. No one wants a repeat experience. Best of luck to you. Love, Jeanne
I left hospital last Tuesday with no explanation of what I had been through except that I was being treated for a minor stroke. I had all the scans MRI and heart and neck and again no information. That's all I had was medication from the pharmacist and sent on my way no advice nothing. Do you get a follow up from your own GP?
Dear Rich
Not sure about the term " minor" stroke.
The hospital will send a letter to your GP. Often a copy will be given to you. Or your GP surgery will provide a copy. You can ask the GP staff, no need to involve the GP for this.
The letter will give details of what the hospital discovered.
your GP may not give any follow up. They do their best, but GPs are not geared up for stroke recovery.
i had a specialist team come to my home for six weeks.
It is good that you had an MRI and a heart test and above all the neck test. Hopeful that no news is good news. If you had a full stroke the hospital will normally call you for a three month follow up.
Get that copy letter then you will know what you are dealing with.
good luck, let us know how things go.
colin
Thanks Colin, it's just a bit worrying the lack of info. I had a physio call today and she said she will ask the doctor on the stroke unit to call me, so hopefully he will.
I found that stroke was/is the cinderella of the medical world. The lack of help was quite disgraceful
. I also concluded that there was a post code lottery. Colchester was very good indeed. But other locations can be poor.
as for stroke during covid, i do feel for you all.
i am hoping that you have had a transient stroke. You get a much faster and complete recovery from transient strokes.
good luck
colin
Thank you, I do have some weakness down my left especially my leg. I am limping and use a stick but can walk with out it. I do feel I have improved since I was first in hospital. My symptoms came on over the course of the week which is why the gp didn't think is was a stroke at first.
Dear Rich
as i understand it, there are three general classes of stroke. Transients. Clots. Bleeds.
for all three we need to get our brain to get back in contact with our bodies.
so do keep moving everything. Recovery in the early stages is faster than later, so wiggle everything, walk and so on.
a lot of us are clots. I am a clot. The key factor is that i have an infarct. Thats a dead bit in the brain. Your letter to your GP will give enough information to determine whether you are clot or not.
about one month post clot, you are out of likely danger. The stroking has stopped so its all rehab and avoidance of a future stroke.
the stroke association has excellent leaflets to read. I prefer the written booklets, but they are also online. The leaflets are so helpful.
You need the letter from the hospital to the GP to direct you in your recovery.
best wishes
colin
Thank you very much for the info.
I was discharged 3 days ago. I'm 32. I was in hospital for 13days. I saw a physio once. I was discharge with a commode and carers. Nothing has been explained. I was diagnosed first with a bleed. Then a stroke. I have had no treatment. No explanation. I am currently unable to walk. I'm in pain. I have no follow up. The only info I have is on my social services report.
it's been awful.
Hi , i hope my post helps,reduce your worries. I am 43 had a bleed on the brain 2 nd December 2020. I was taken to hospital but they decided the best action was not to do anything as they believe the bleed would stabilise, itself which it did a day or two later, that. I left hospital a week later. Like you i couldnt walk and had left side weakness in my arm too i had a commode initially too.
From my experience it will get better and improve. I hope you are getting physio. I practiced the exercises most days, i feel very lucky i can walk with a stick, i have regained virtually all my strength in my left side. I am still progressing too.
Sending you lots of supportive thoughts you will gwt there.
Cheers
Dave
I am sorry to hear about your experience. In general, with a stroke there is no treatment, but there is medication that will reduce the risk of another stroke. Changes to lifestyle will also help to reduce the risk.
You should have access to therapists that will help you adjust and to recover. Have you contacted the Stoke Association about this? Therapists should be available to you from your local health authority or hospital.
It may be that COVID-19 is reducing the ability to assist you. The situation is improving in many areas.
I found that talking to therapists helped me a lot. They can assist in many ways. There is a lot of self help available on this web site. The association can arrange for a survivor or therapist to help you. Physiotherapists may be required as well.
Have you contacted your GP? They should have your detail on file from hospital, but it may take time. It is vital that you get a prescription for your medication!
I wish you all the best with your recovery. This can take several months.
Graham