These are the neurons in your head trying to rebuild connections and whilst they’re doing that, they’re exhausting you and require lots of sleep and nutrients to fuel the that recovery process. Why do you think babies sleep so much, feed so often, get cranky and cry a lot…because their whole brain is newly growing and developing.
Here’s a single brain cell looking for a connection
And here’s one ‘finding that connection’
Plenty of rest aids recovery, vital even, in the first 3mths so don’t even try to fight it.
This is very helpful. To see what is going on inside our brain is really helpful thankyou. Mine was left side mca affecting my right arm and leg
Thank you, I’m glad it’s a help to you. I’m no expert, I just have a very analytical mind and love to dissect it Guess it runs in the family as my mother was a psychiatric nurse and my daughter is studying psychology at university so she helps me a lot. Keeps me rational and well within the here and now
My stroke was similar to yours, I’m now just over 2yrs post stroke
It does get easier! There’s no use getting cross with yourself, it is what it is and you just need to be patient, time heels and you need at least a year. It’s just the same for a replaced hip or broken ankle and I should know as I’ve both It can’t be rushed no matter how hard you try, so be kind to yourself and just go with it, one step at a time. I found the sooner I relaxed into it and learnt to accept, the easier it all became.
And before I knew it, it’s 2 years on and I’m off to the gym every other day or out hiking or running errands and getting on with life again. That doesn’t mean to say I have no residual effects from stroke, I just consider myself a work in progress
This was brilliant, thank you so much for sharing. It has helped a lot.
Aye, and when you think about the billions of cells and the different types, glia &c. It’s no wonder there is a lot to reorder and reorganise after the devastation of stroke. If we break an ankle, we can physically rest it and it does take a long time to heal, not so easy with the brain as it’s functions are always being activated, even when sleeping.
Precisely @Rups, the brain never gets time off…even for good behaviour
There’s something like 86 billion brain cell in our head. So I’ll take an uneducated guess by saying a fifth, maybe less, maybe more have been damaged or disrupted in some way or another as a result of our stroke.
Now I know how some like to shout and complain about the incompetencies of our NHS on here but even the neuroscientists don’t know nearly enough about what is going inside our heads. I don’t know how that footage up there was taken, but I’ll hazard a guess it wasn’t routine hospital procedure on a stroke patient
But hopefully one day they will.
Yes Loshy you are right! Some of it is due to incompetency, you get that in walks of life. I think half our lives must be are learnt through trial and error. There’s incompetency in all of us, the flaw of nature I suppose.
Talk about back peddling Did you not call her out on it there and then, in some instances it better to strike while the irons hot, as they say. But then that’s not so easy with screaming migraines is it. Was that her trial and error, wonder if you she ever learnt from it
My eyebrows are raised so high I think they’re on the back of my head now
There’s incompetence but then there’s gross negligence; I hope you’re taking this further! They’re the ones who do give the NHS a bad name!
I think you might have read that wrong, think that was what she felt they were all telling her
Thanks for this very useful analogy, @EmeraldEyes. Helpful to see it in this light.
Wow hope your healing now
Ive recently gone back to work but fatigue is so hard to deal with so tired all the time. 10 months post stroke now. Nothing feels easier as leg and fingers appear to be getting stiffer. Problem for me is people keep telling me its in my head. Ive gone from 100mg of pregalin to 400mg so if im getting better why is my medication getting higher. A little rant over sorry x
Rant away, there is nothing worse than people telling you its all in your head!!! You could say yeah Ive had a STROKE!!! I am sick and tired of people not understanding, it makes life even harded that it is.
Take care, Jane.
It does Jane you feel so alone all the time as my friends and family tell me im getting better all the time. Its the after effects no one explains to you. Such as why are my fingers 10 months later suddenly feeling numb why has this slight tremor appeared that wasnt there after my stroke. No one wants to listen as they think “oh here go whats wrong now”. I drift in and out of here as all i seem to do is rant lol. Im a happy person not like i was but im smiling all the same i just want to know what it is im feeling and why. Take care x
I dont think anybody can give an explanation of why you feel like you do, this is something that all us stoke survivors experience, but there is no easy answer for it. The only thing I have had explained to me is its my brain re-righting itself…whatever that means!!! But just keep your chin up. I have improved, bit still get strange days, when everything feels wrong, I am learning to live with it as I get no help from my medical proffession. All they ever wanted to do was put me on antidepressants, seems like their answer for everything. I have refused and am glad I have battled on myself. Not saying that they wouldn’t help other people, but not for me. I like you get very very lonely, I think that is one drawback of the stroke. Anyway, take care and keep your chin up. You will get lots of support on this site. I coudn’t have coped without it.
Sending love, Jane.
I took the anti depressents Lorraine. I didnt want to but felt i needed something as my mood deepened badly and i took them more for my family then myself. They worked initially and my mood was more supressed then lifted but i felt better. They are trying me on a new one now which im taking tomorrow whjch is meant to be good with Neurological pain as well as being a antidepressant we shall see.
I think thats the one they are trying me on Duloxetine. I am on 400mg of pregabalin at the moment aswell but not sure if im getting any benefit from it and walking is getting a little more difficult with left foot drop happening more and more. There are so many things to deal with i probably just need to accept this is as good as it gets. Trying to keep positive and sending you positive thoughts Lorriane. X