Vision help

Hello my name is mark and I had my stroke 4 weeks ago . As like everyone on here all of a sudden everybody you meet no’s some one who lost their vision . Mine is lost on the left side and was just asking if anyone who reads this can give me any straight facts , on a morning I see better than on a afternoon . I feel as time goes on that I’m getting to see more light in my left eye which is confusing , I do word searches as the nurse suggested is there anymore that I could do  thanks  mark 

Hi Mark, so sorry to hear of your stroke.  4 weeks is still very early in terms of recovery, so nothing is set in stone at this point.  Lots of stroke survivors will tell you of their recoveries, from pretty scary starting points, and this will surely give you encouragement and a positive attitude towards your own recovery.  

Tiredness, or fatigue is common to nearly all stroke survivors, so this is probably the reason why you are able to see better in the morning, after a night's sleep.  Learn to be patient, and to pace yourself; a mid-morning or post-lunchtime rest, may prepare you for the afternoon and give you a bit more energy.  Try to rest before you feel yourself flagging.  Be prepared for some tough times too, if you know that this happens to many people after stroke, you will know that you're not alone, and that this is "normal".  You sound as though you have a good attitude and that you're ready to take responsibility in your recovery.  If you have time and inclination, I'll offer two suggestions!! (I'm very bossy!!)  

1) Try to keep a daily diary, just a few short notes - it will surprise you in a couple of months when read it, and see how much progress you have made  ?  

2)  Google:  "A letter from your brain"  this is a very powerful and poignant essay about a brain after an injury/trauma - it will give you, friends, & family an insight into what may be happening to your brain, and how you can protect it.   

In the meantime, stay as positive as you can, take plenty of rest, then some more rest!!  Don't worry if you experience a period when you don't notice outward progress, your brain will be busy doing 'inside stuff', finding new pathways and ways to support you as it re-wires.

Take good care, keep posting and look out for other people posting to support you xx

Hi Mark, 

I myself lost the left visual fields in both my eyes after my stroke, medically termed a left homonymous hemianopia. Unfortunately I my sight never recovered and am still left the same 3 years on, however at the time I was told by the ophthalmologist that recovery can continue to take place upto 6 months post event so you're very early on in your road to recovery. 

It's good you're aware of your deficit too as you can help yourself in the meantime by using coping strategies. There is some research out there, mainly from the US, that was based on trying to recover the areas lost through excercise and stimulation, VRT (vision restoration therapy), however there are very little in the way of studdies to back this up and I don't believe it's taken very seriously in the UK by the medical profession so avoid this snake oil. 

Could be encouraging that you're seeing more light gradually but I think you should ensure you're referred to your local low vision clinic and talk with an ophthalmologist about your symptoms if you haven't already. 

If you have any other questions let me know. 

Andy 

Cheers Andy hope ya well and thank you for the advice I’ve got the opnathalmoogist ( followed your spelling lol)on Thursday will post and let you no what came of it thanks again mark 

Thank you so much for that I’ve recently started to keep a dairy for my own sanity really , the positive attitude comes mainly from talking to people as your self on here . I will keep posting and thanks again for the advice 

Hello Mark. Im 3 years post stroke. I had extremely poor blurry vision after stroke, i couldnt focus and its difficult. I was in hospital during the 2016 euro tournament. Couldnt look at anything for first 3 weeks, then tried to watch the games, but it was extremely difficult as i could see 44 players and 2 balls. After 2 months in hospital i was discharged into the big wide world. Still very poor vision. Eventually saw a orthoptic consultant and he said it was 6th (or was is 7th) nerve palsy, where the muscles controlling the eyes couldnt work together and focus on the same thing. The brain swelling takes months and months to subside. I got measured up for prism glasses to distort one eye to try and get both eyes looking at the same thing at the same time. I have to say it helped a little but it wasnt like normal still. Anyway, after 6-9 months things did improve naturally and i dont use glasses anymore, but it is not like pre stroke. Basically, things take months and years, not weeks, so dont give up hoping for that improvement. 

Thanks for the honest answers , was going to see my eye specialiststhursday but he was taken I’ll My vision is I proving very slightly ,my vision seems to be good on a morning and I now can see more light as for the euros I don’t think we would have got any further with 3 balls on the pitch cheers for the advice will keep ya posted mark 

Thanks for the honest answers , was going to see my eye specialiststhursday but he was taken I’ll My vision is I proving very slightly ,my vision seems to be good on a morning and I now can see more light as for the euros I don’t think we would have got any further with 3 balls on the pitch cheers for the advice will keep ya posted mark 

Hi my name is Mark too, so i’ll be MarkW!  I suffered a hemeniopia on my right side of vision in both eyes, I’m 7 weeks in.  About 4 weeks ago my peripheral vision improved but i’ve Had no improvement that I’ve noticed since.  My vision is missing from 1 to 3 o’clock and i have the classic blind strip down the centre of my vision.  This seems to be fairly rare and I’m looking for anyone to talk to with this vision problem, whether it be support, help or hope.

Hi my name is Mark too, so i’ll be MarkW!  I suffered a hemeniopia on my right side of vision in both eyes, I’m 7 weeks in.  About 4 weeks ago my peripheral vision improved but i’ve Had no improvement that I’ve noticed since.  My vision is missing from 1 to 3 o’clock and i have the classic blind strip down the centre of my vision.  This seems to be fairly rare and I’m looking for anyone to talk to with this vision problem, whether it be support, help or hope.

I'm 2 years post stroke and also have some vision problems mainly on my left side,I understand that this is common following a stroke but have not had my vision assessed as apparently this is not routine (even though it should be).There are a couple of websites that offer free on line therapy which you might find helpful and that explain things.

Eye Search and Read Right. They have been set up by  UCL.  Hope you find it useful.

Hi Susan, many thanks have just signed up for Eye Search. I am under the NHS in Sheffield and to be fair they have been excellent concentrating on my specific sight problem. They have pointed me to Read Right, which has been good to help me scan more. The Eye Search I hadn’t seen and have just signed up to. It’s another great tool, so thank you.

Do you think you have had some improvement over the years?

Many thanks again

Mark

I'm glad it was helpful. I have been using Eye Search for 4 months. I do feel that things have improved but I'm not sure if this is due to the online therapy or a general improvement.  Good luck