Useless arm

Hi. I am quite new here although have posted before regarding Accupuncture for stroke.
I had a bleed 3 months ago and after 5 weeks in hospital came home. The bleed has affected my left side and affected my leg and arm. My arm behaves very erratically I.e. will suddenly jerk and my left hand will be holding something then suddenly drop it. My leg was very weak. I am doing “wobbly walking” in the house but need someone with me in case I fall. My foot turns over sometimes but the Community Physios are arranging for me to have a splint in the hope it will help. I am having physio twice a week which I am very grateful for. My question is has anyone else had an erratic arm which has gradually improved and if so what help did you have? I’ve been given exercises which I do every day but no noticeable difference. My fingers are stiff and spastic - has anyone had Botox on their fingers?. I know I will be told it’s early days and to be patient but my arm hinders my walking as I cannot use it to get up from a chair or hold onto anything to steady myself. Sorry for long post but just looking for advice. Thank you

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i’m 26mths in from an ischmic that took my right side away - so im typing this left handed
i have pushed my self to use right side for more than its able everyday for those 700+days and is improving. Yesterday i took (an empty) coffee cup back to the kitchen right handed!
i always do light switches, door handles & other gross control things. Im just getting equal to some finer motor skills
Learned non use is a major challenge

if you use every opportunity to operate at the boundary of possible it does (for me) recede. not consistently or evenly but improves month by month
Caio

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Hi, I’m nearly 6 years post stroke following a hemorrhagic stroke which paralysed my left side. Unfortunately I still have very little functional movement in my arm and hand. My left hand is also very tight and in a ball most of the time despite regularly stretching it out and wearing a resting splint at night. I have been having Botox in my wrist since I was in rehab but I’ve never had the regular injections, every 4 months, which I was told are important for it to be beneficial. Botox is a specialist treatment and therefore acess to this is very difficult to get. On occasions I have gone a year between treatments , which is like starting from the beginning again. I’m in the South East (Kent) and post stroke services are practically non existent unfortunately. Hope services are better where you are.

Regards Sue

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@Apple I’m sorry I cannot give you any support as this hasn’t happened to me. I do hope you get advice and sorted soon. Keep going. Kind regards Loraine

@SimonInEdinburgh welcome to our SS forum I’m sorry you have had a stroke.

I wish you a great recovery kind wishes Loraine

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thnx
ivebeen here a while - im much more active in other stroke fora or forii (is that the plural of forum?)
:slight_smile:

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Welcome to the site Simon
Sorry to hear of your stroke
A lovely city indeed you come from I did all my schooling in Edinburgh & lived in Morningside
I’m now living in London for past 10 year and frequent Edinburgh every 2nd month I was there for Xmas & of course the Hogmanay (HOOTS-MON) :joy:

Yes. My left arm was very erratic and jerky. It has calmed down but can still have a life of its own. Try to utilise it as much as you can. After 7 years it has improved but is still not fully functional.

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If gone the other way London (south woodFord–> Edinburgh (Danderhall)
Been here over 25yrs

That’s very near Musselburgh . ?
& that main road takes you to Dalkeith/ Prestonpans . It’s been so long since

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Hi Sue, I’m in Kent too and had practically zero help from the NHS 9 years ago (including not diagnosing my TIA until next day when I had my stroke). Botox didn’t work on my bicep, which still rules everything my arm tries to do. I had to pay, but I have an ARNI trainer once a fortnight who works with me to strengthen my other arm muscles and this has helped. I still can’t quite raise my arm above shoulder height, but it’s improving all the time and I reckon another year should do it. My hand still isn’t great, but stretching helps (and going to the gym).
Minnie x

Hi Minnie, sorry to hear that your botox wasn’t successful. It’s so frustrating when you try something new and your hopes are dashed. We have purchased a number of pieces of equipment over the past 6 years and it upsets me to admit that nothing has been particularly successful. I also worked with an ARNI physio but their way of working wasn’t for me.

I’ve just volunteered to take part in a research project for Upper limbs and I’m just waiting to get my dates to commence this, all very exciting.

Keep up the good work.
Regards Sue

Yep
:grinning:

And now I need to add 17 or more chars to post

Research projects are always interesting to do (I’ve done a few for UCL) and they can be really useful for future treatments. Good luck!

Hi Minnie, yes I agree, I’m always keen to tpart in research projects and have done 2 at tbe National Hospital Queens Square in London. Looking forward to see how this goes

Regards Sue

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I too have found research is a way to get interventions that add value to my recovery etc.
I did have one that ‘expelled’ me for doing to much upper limb rehab and not restricting myself just their view of what to do!

@Susan_Jane … do you have a link to volunteer by any chance? Good luck by the way :sparkles:Anne :sparkles:

Hi Anne, I haven’t got a link but it’s the Power Bead Garments Research Project that I found through the Different Strokes website.

Hopefully this Research will be useful to SS in the future.

Regards Sue

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Thanks. I’m working hard on my arm and hand and I’m lucky in that I am getting physio twice and sometimes 3 times a week from the Community Stroke team. Think I might be seeing a slight improvement but it’s hard to tell thanks for all the encouragement

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What ‘stage’ are you at?
i can raise my right arm above my head and almost touch my left ear but wrist movement isnt enough yet. i can almost grasp stuff with thumb & 1st finger but mostly cant let go. Its been a two yr journey so far.
Ive found self-directed is most useful but not as reliable as i’d like! i think that is helped by peer supprt

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Im 3 months post stroke and can raise my arm but have to concentrate to stop it waving around! I pick up marbles as therapy and transfer them from one box to another and also place them on a solitaire board - not easy. Walking wise I am using a stick in the house to go to the loo etc but darent do it without my husband behind me as I am quite wobbly and its hard to left leg with feels very heavy and is still quite numb