Hi all...Bear with me while I give you a little history......Husband had a very severe stroke at the age of 34, 26 years ago, lucky to survive. Out of the blue and never given any reason for it. Was hospitalised in Germany, whilst on Holiday, for 6 weeks and had extensive tests before reluctantly being discharged to return back to the UK with the promise that he was to undergo more tests and ongoing treatment. Was then told nothing more could be done in the UK and was put on blood thinners. We were given a consultants appoinment 6 months after our return so we paid privately to be seen quicker as Hubby was experiencing anxiety and severe side affects with speech, movement, memory, behaviour and fatigue to name a few. No ongoing care, physio or psychological treatments were offered. He could not work for at least a whole year and has never really fully recovered.
He has managed and coped and because of this massive change to our future plans we always planned to retire early and he was lucky to be able to privately retire at 50.
Over the years has always suffered with fatigue, never recovered the full senastions on his right side, memory compromised and had terrible mood swings but now manages this better. He was seeing a consutant every couple of years, especially after having a TIA a few years back after coming off blood thinners, but is now back on them.
My query is this.....I can not find any information on people who have always experienced sysmptons but are now gradually worsening with age, several years after, and we seem to remember the consultant saying this would be the case as he got older.
The main problems at the moment seem to be pins and needles and numbness in his feet and hands and arms which have always been there but are slightly worse.......he was tested and has had carpel tunnel treatment on his left hand and is waiting for surgery to his right which is the stroke affected side. Has been having ongoing physio treatment and they seem to think his symptons are in fact stroke related and not carpel tunnel...they have done several tests and proved his legs and feet to have the same symptons and also his left arm reacts completely different to electric current than to the right.
After never having any support or care all those years ago would be great to get some useful information or hear of others experinces that are similar
Many thanks for bearing with me