Ramblings

I’m not a stroke professional. I simply have my own personal experience of stroke, together with what I saw of others whilst I was in hospital a few weeks ago. In addition I have read a little, some of this being on this forum.

Some things have become apparent to me. Our own experience of stroke is probably very different to that of the next person. The treatment for my ‘version’ of this will necessarily be different from the next guy or gal.

…and here is the rub. In any one stroke unit is a variety of cases. From beginning to end of the process, discovering and then treating what each individual’s symptoms are is a process of elimination. It should be obvious that life-threatening issues must be addressed first. Going through this process means enduring ‘useless’ tests but they are not useless when they turn up a positive. Until the tests are performed this cannot be known. Equally at a later stage there might be issues that the person with the stroke is not aware of so more possibly ‘useless’ work must be done.
The whole process is a huge list of ‘possibilities’ that must be worked through until the stroke patient is stable and the possibility of further complication has as far as possible been eliminated.

Once the diagnosis and treatment has been settled, which can take a month of extensive work, a further period, possibly a lifetime of rehabilitation begins.

And here is another not so obvious fact. Recovery from a stroke depends very much on the form that stroke has taken, the individual that all this is happening to and what help and support they receive. Equally the time that each stage of recovery takes also depends upon many factors.

All this means that it is impossible to see into the future and predict what treatment will be best and what outcome can be expected when a stroke first occurs. In many ways each individual is on his own to deal with things, but equally there is support waiting to be recognised and used.

All of this ramble is me trying to rationalise this chaotic experience which has thrust itself upon me.

I tell myself that I have determination and optimism and I will prevail.
I wish my fellow sufferers all the best and hope we will find a way through all this.

I also feel that supporting one another is an excellent strategy for coping with what has befallen upon us. (hmm, is that correct word usage, it feels clunky, maybe I should have left the ‘upon’ out)

Many thanks, also, to the creators of this Forum and its users, who have given me a place to sound off and an audience to address.

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Well said Bobbi, think you summed it up perfectly!!! And don,t worry about rambling on, it’s good to get it off your chest. We all know how you feel, it is a living nightmare, but we carry on the best we can.
Take care, Jane.

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Good post @Bobbi :grinning:. This forum is so good for helping people feel that they are not alone experiencing this wierd new world. As you say we all have a different mix of unpleasant changes but there’s always someone that can relate to your predicament. Even though I am back working I still find time to pop in and see how everyone is getting on but don’t always have the time (or energy) to join every post.
So if I don’t join in it doesn’t mean I don’t care or am not interested.
The Stroke Association have provided an invaluable service here for which they should be commended!
Onwards and upwards everyone :ok_hand:

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Evening @Bobbi. Great post. If I hadn’t found this forum I would be in a much worse bewildered state. Being able to realise I am not alone, my thoughts and feelings are replicated and understood by other stroke survivors. I have had virtually no stroke follow up as it has been lost in the long list of issues I have as a result of my accident, but I have learnt alot from others on this forum and managed to try and piece together what has happened and how to manage it. Thank you everyone :+1:

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@Bobbi well said, whilst the mechanics of a stroke can be summed up in a few simple words, the aftermath is individual, wide and varied.

It’s great we can be here to support each other.

Best wishes, take care

Lovely, @Bobbi, well written and precise. We’re an odd bunch, our grey matter has been battered and yet the rest of the world rattles on. :grinning_face_with_smiling_eyes: