Hi everyone, has anyone else had nerve damage in their ear caused when the numbness travels down one side of the face during stroke? Ive been able to hear blood running through my veins in my right ear thinking it was tinnitus more or less since the stroke. In last 6 months I’ve developed an intolerance to low tones which causes pain in and around my ear to different degrees depending on the depth of the sound, this is called hyperacusis. Anyone else with same issue, thanx in advance x
@Raggie for months after my stroke I had a whooshing sound in my right ear as well as tinnitus. I thought it was part of having had a dissected carotid artery. I’m not sure if thats the same thing as you mention? I have very sensitive hearing too which started when i had my stroke. The whooshing stopped about 11 months post stroke - assume around the time my dissected artery had healed.
@Mrs5K yes that sounds exactly the same although I’ve only noticed I’ve had intolerance of deep sounds until relatively recently, my stroke was June 2019. So it’s because both our strokes were caused by a carotid dissection then?
Thanx for your reply x
I get this but it is in my left ear. The ‘noise’ varies in intensity and most of the time I dont really notice it. Cant really figure out why it does it. It is less frequent now than it was 4-5 years ago.
@sunnyday apart from disturbing my sleep I can half the time shut off to it, it’s the hyperacusis that I’m having more bother with. If you watch coronation street……Nick Tilsleys voice hurts the most
In addition to my previous post the ‘noise’ in my ear is a pulsing noise and exactly equals my heart pulse rate.
@Raggie i put it down to my dissected carotid artery - never had that confirmed by medical,professional. I did get checked by ENT and they weren’t concerned by it. I’d had a CT Angiogram (for another reason) a few weeks prior to my ENT appointment so they didn’t need to get one done. It showed nothing they were concerned about in relation to the whooshing. They did say though that if it is one ear only they would normally do a scan so if you’ve not been checked it may be worth asking for a referral. Mine drove me mad at times and I was sooooo happy when it stopped.
@Mrs5K I’ve been to ENT and been referred on but just a formality, don’t think they’ll be able to do anything. Hyperacusis can be caused by damage to the facial nerve and/or the 8th cranial nerve……oh I can’t wait for the day it stops.
@sunnyday yes that’s right, it goes in time with your pulse most of the time.
Sunnyday-- I had the same whoosing sound in time with my pulse for years in my left ear. It started many years ago after a bout with a bad cold or flu. I figured it was probably some kind of fluid in my ear/eustacean tubes or inflammation left over from being sick. If I slept on my left side it was really loud, so I always had to sleep on my right side,(It was softer or subsided). Funny thing, after years of this, I had a stroke. It went away after the stroke. Jeanne
I second @axnr911 on this. I been getting the exact same systems from time to time long before my TIA. I could put it down to a number of things, during a pounding headache, head colds, infection in ear from cold or just because my ears are too cold, being over tired or seriously stressed. These are all things that can bring it on for me, but it stops once I get over what’s brought it on. But I can assure you it is NOT tinnitus you’ll be relieved to know, just from what you’ve described. I’ve lived with that particular condition most my life and it never switches off.
A doppler type whooshing from blood flow
Lots before my stroke and periodically since.
It’s labelled as a form of tinnitus
I’ve been getting ‘normal’ whistling tinnittus more n more since my stroke too
My consultant says mri don’t show any cause for concern
So difficult to know what’s material with this ‘new normal’