Hi there, so 6.5 weeks in and my Mum’s situation is getting on top of me now and I just need to offload somewhere.
Mum had a haemorrhagic stroke and pretty much the only part of her brain that hasn’t been badly affected is her ability to understand what’s going on, her memory and her speech - although her voice is deeper & croakier than before but we can understand her easily enough. Physically she is still very limited (basically can’t do anything for herself) and appears to be in constant pain - they are trying various methods of pain relief - and this week had a PEG tube fitted as her swallowing still isn’t as it should be. although she is able to have spoonfuls of pureed food.
At our family meeting at week 4 the MDT team didn’t give an overly positive outlook and were more concerned about her low mood. So they discussed with us discharging her early and continuing the care at home. They increased our visits to every other day but not sure this has helped at all. She’s very tearful most of the time and really doesn’t want to be in hospital, especially over Xmas.
Part of the reason for switching to the PEG tube was so that she could come home and all the necessary equipment has been delivered to the house. We were told the aim was to get her home for Xmas but today my Dad has been told this is highly unlikely due to a lack of carers available to fulfil the care package she needs. This has totally thrown my Dad as he was banking on getting her home and he’s now looking into private care if that will speed things up. We’ve been told numerous times that she’s likely to have a better chance of progressing in her own environment and I’m now starting to worry that Mum is slipping into some deep depression and she’ll miss that opportune window to regain some of her functions.
There’s a ton of other things going on as well but I’ve probably garbled on long enough! Some of you have been kind enough to comment on my other posts and I’m so grateful this community exists as I’ve learnt so much from you all. xx