I think my neuro dr. Is not good

All he does on each visit is test reflexes. Thats it… then gives a presciption for baclofen.

What does a neurologist typically do during a follow up visit?

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I don’t know about neuro doctors, but if you’ve had a stroke, have you been having regular physical therapy? That is so important. Jeanne

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Don’t have a neuro doctor or a physio - am out in the sticks. Fortunately I do have an excellent GP

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Hi, sorry can’t help with this one. I had one appointment with a neurologist one year after my stroke, which I had to repeatedly chase up for and basically he did nothing other than ask a few questions. I’ve never been seen since !!

I live in Kent and the after care for stroke survivors is basically non existent, I haven’t even got a decent Gp. I have a routine blood test once a year and a 10 min aappointment with a stroke nurse at the surgery. Very frustrating.

Sorry I couldn’t be more helpful.

Regards Sue

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I was going to physical therapy and it ended…
My gp is very good…
Thank you for the replies… :slightly_smiling_face:
Hav3 a beautiful day!

@Elizabeth1 hi I’ve seen a neurologist and neurosurgeon each time I’ve had my feet, hands, reflexes, spine, arms and legs checked.
Then asked to walk in a line, bend touch my nose with each hand arm across my chest either side and a machine kinda thing that rolled over my back (where I have pain) hands and feet.

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I’ve yet to see the neurologist
But after waiting some time I do have an appointment in May. If it isn’t, cancelledagain. This topic is interesting to me as I have very little idea what to expect. I think I have been referred because of my foot drop. So we shall see.

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@Elizabeth1 mine just asks how I have been, they always have students in learning. Then thank you see you next year

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Thank you all for the teplies…perhaps my expectations were too high… :smirk:

If you are all having trouble, regarding aftercare, which it seems you are, phone your local department of health and complain or just query it. Remember to send a letter to your MP, if you still get fobbed off. It works wonders usually, it is the only time anything gets done. Plus you can always have a second opinion. I am lucky, I have fairly good doctors here in Cornwall but believe me they can vary. Unfortunately, contrary to popular belief our health service has been awful for years. Having lived and worked in many different overseas countries I have seen the difference, even in the so called poorer countries. Their free hospital care is quicker, cleaner and kinder and no waiting!

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Hi Sue. I live in Kent too and totally agree re lack of support services. I’ve had to pay for extra treatment. GPs are only useful for the general stuff. They don’t have the expertise of a neuro specialist (which are like hen’s teeth). I did manage to get some physio sessions at the local hospital, but only got about 20 sessions. I now have an ARNI physio, who comes to my house and tries to kill me once a fortnight, but who is worth her weight in gold.

Hi, I definitely think lving in the garden of England isn’t great if you’ve suffered a stroke. We’ve spent a fortune paying for private therapy since my stroke 6 years ago. I worked with a brilliant private neuro physiotherapist when I was discharged from hospital but unfortunately at £80 an hour, we couldn’t afford to continue that indefinitely. I also tried working with an ARNI physio but didn’t really gel with him and gave up after a few months. I don’t know where you’re based in Kent but you can do a self referral to the Bexley Neuro Rehabilitation Team at Queen Mary’s hospital in Sidcup. I was allocated 7 physio sessions which were useful and you can re-refer yourself every 6 months or so if you require further help. I am considering trying again with an ARNI therapist, fingers crossed I might have more luck with a different therapist.

Keep up the good work. Regards Sue

I…My neuro doctor has minimized my condition to left side weakness. I cannot move left side and in the hospital when i woke up, this is what he told me. --your left side may be weak…Meanwhile i could not move left side and still cannot. I see people on you tube with hemipelegia that can do moret than can…i am frustrated to be labled weak. Im notweak…im paralysed.

I find it insulting.
Weakness to me means i cannot pickup a heavy item. Not that i cannot move at all on one side. To me I feel paralysed and still in a wheelchair. And physical therapy knows this.

Hi Elizabeth, I completely agree with you on that one. I’m 6 years post stroke following a hemorrhagic stroke which paralysed my left side. I have never understood the description when people refer to left/right sided weakness. My left side isn’t weak it’s paralysed.

It can be very frustrating at times. I try not too think too deeply about these things, it’s wasted energy and can make me feel down.

Take care and keep up the good work.
Regards Sue

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Hi Sue,

It really is worth trying ARNI again. I have had 2 (female) trainers over the last 5 years (the first stopped coming during lockdown) and both have been excellent, but worked in different ways.
I also use the local gym and go to aquarobics classes. However, I have a regular
morning stretching & exercising routine, without which I wouldn’t function very well. When I think how far I have come I realise the hard work is paying off. My hand still resolutely refuses to do very much however. Also, if you have a spare few hours, have a look at Tara Tobias on YouTube. I followed her channel a lot during lockdown.
Minnie

Hi Minnie
Thanks I will definitely look into giving ARNI another try. I also have a regular exercise routine. Weather permitting, I walk along our road and back again but when the weather is bad, we make a point of going food shopping every day and visit our local Tesco superstore, where I walk up and down the Isles and we stop and have a coffee. Iit’s a good way of doing some physio and passing some time away. I also have a couple of pieces of equipment that I use to try and wake up my arm and get it going again.

Keep on keeping on. Regards Sue