My head trouble they reckon is due to crystals in my inner ear but so far nobody seems to be of help to me. I have been on here before complaining about it but what I cannot understand is I am practically grounded because of it. I struggle to do anything but make myself do things that have to be done. Does anybody suffer the same I seem to be on my own with it I would be happy to hear if anyone has any idea how to cope with it I am at the end of my tether. Norma Jean.
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Did your doctor not suggest the Epley Manoeuvre for it? I know my MIL had it years ago and her doctor gave her this exercise to do. I think she did for about a week, not sure exactly how long, but it did work! Doctor warned it may or may not come back but it never has! Such a simple manoeuvre and so easy to do too.
What happens during the home Epley maneuver?
- Start by sitting on a bed.
- Turn your head 45 degrees to the right.
- Quickly lie back, keeping your head turned. …
- Turn your head 90 degrees to the left, without raising it. …
- Turn your head and body another 90 degrees to the left, into the bed. …
- Sit up on the left side.
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I did that manouver for a long time and it had no affect I saw the Ear Nose and throat specialist and told him with no explanation and he discharged me from his clinic told me to go back if I was still in trouble But thanks for replying. Norma Jean.
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Thanks Loshy I have replied to Emerald eyes and told her that I have seen the Ear Nose and throat specialist who did the manouver and gave me exercises to no avail. I went back to see him ans he has discjharged me from his clinic. I dont know who else I can see I just cannot understand in this day and age that somebody has not come up with a cure. Norma Jean.
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@Norma_Jean_K sorry to hear you’re still suffering with this. It’s horrid. You mention above that you were discharged by tye hospital but they said to go back if you still had trouble. Have you been back? If not, you should. Keep making a fuss until someone helps you. I had my referral rejected by the hospital but my GP has gone back to them again.
Wishing you all the best.
Ann xx
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I did have it for a few years prior to my stroke (can’t say now exactly how long I had it). Bad in the beginning but quickly frittered down mainly just at bedtime…where I’d grab hold of the nightstand to stop myself falling out of bed…even though I wasn’t actually falling anywhere 
I’ve not had it since the stroke funnily enough, over 2yrs now. But, you’ve had it since you had your stroke I take it? I think you should take @Mrs5K advice and go back to them, they said that you could. Might even see a different doctor who’ll look at it from a different perspective and try something different. Nothing ventured nothing gained.
Thanks Ann I might go back to see the specialist but we have had a lot going on as my husband has not been well so we have been a right pair together. I get that I cant be bothered I just want a quiet life and never want to go anywhere. Thanks for replying Norma
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@Norma_Jean_K sorry to hear your husband has been poorly too. Hope he’s on the mend now. I think you should go back to the specialist. You never know they might be able to help. Worth a try at least i would think.
Wishing you all the best.
Ann xx
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I intend to see the specialist and will be ringing him. Emerald eyes sent me some head exercises to do I will give them a try first. Thanks for your reply. Norma x
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I am sorry you are still suffering does yours affect everything you do daily mine does and makes my life so miserable. I am glad the tight hat helps you I tried it but it did not make a difference to me. Thanks Jane for replying. Norma x
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Thanks for replying I have moaned to my gp for years now but he doesnt understand what I am going through. I will probably be going to see hm in the near future with other things I keep having high blood pressure and I have got AF and I think nit would be a good idea to give me and MOT if you know what I mean. Norma
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I sincerely hope it’s something as simple as doing those exercises for you.
You say you keep having high blood pressure, are you on blood pressure medication, some such medications can cause dizziness, it may need tweaking or be switched to another one. But that is definitely something you really need to be seeing your doctor about.
You are right the doctors just switch you off they just dont understand what we are going through. I have said that I would pay a lot of money if somebody could cure it. Yes I have some days that I seem to cope with it better than others. I am so sorry that you are suffering the same please keep in touch so we can compare notes with each other. When we meet up with friends i feel the odd one out even though they cant see whct I am going through. Keep smiling Norma xx
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I have the crystals thing and my ENT doc taught me how to do the Epley maneuver which helps. You can find how to do it on U-tube. Roberta[quote=“Norma_Jean_K, post:1, topic:34354, full:true”]
My head trouble they reckon is due to crystals in my inner ear but so far nobody seems to be of help to me. I have been on here before complaining about it but what I cannot understand is I am practically grounded because of it. I struggle to do anything but make myself do things that have to be done. Does anybody suffer the same I seem to be on my own with it I would be happy to hear if anyone has any idea how to cope with it I am at the end of my tether. Norma Jean.
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Thank you for that information about the manouver I have already been given one I can try but I have been doing one that the ent specialist gave me I did it 3 times a day it was very trying but I kept doing it but it did not make any difference. I will look that one up and see if it is the one that has already been recommended for me. Norma
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Thanks Jane I live in hope every day I just want to live my life like everybody else I would love to go in the shops. We have all our shopping delivered but its not the same as looking around is it. I send hugs to you too and it will be nice to keep in touch as we are both the same and understand what each other is suffering. Lots of love to you Norma xx
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