I have got a very strange feeling in my head ever since I had my stroke almost 4 years ago The stroke affected my head and my eyes it left me with double vision and this awful feeling in my head which I cant describe. Nobody comes on to the forum with anything the same. I read all the stories and feel very sorry for everybody who have lost use of their limbs and it makes me feel as though I am alright but I am not I cant twist round and sudden turns make me very unsteady my balance is dreadful. I need somebody with something similar to speak to. Sorry I have gone on but it does affect my life so much. Norma Jean.. My doub le vision has gone now so I hope the head will follow. Best wishes.
Hi, I had my stroke almost four years ago too, and anytime I get a strange feeling in my head, I automatically think oh no not again, if I was you as yours is constant I'd speak to the doctor who may be able to refer you to stroke specialist. Good luck.
Hi Norma , 2 years on / similar problem in unsteady & advise been given ! Use stick to walk , when walking all my brain use is focused on just moving forward , if I even try to look at say a picture , on the wall , somebody speaks to me , put my hand in pocket for hanki , without STOPPING, become giddy & unsteady. Must stop , refocus & turn my body to face , as like you find it painful, difficult to try & twist my neck . Try to remain positive, but with no real improvement , wonder if this is IT. Good talking David.
Thanks for your reply David I am pleasedthat somebody has got similar things to me. it does make everyday tasks difficult, my husband has to do most of the work I am very limited to what I can do but I try to do more if I can. I was a very active person before I had my stroke I walked miles did keep fit, yoga. did a lot of dancing. It was a shock when it happened and I get frustrated. But onwards and upwards as they say and I do try to be positive I used to be a very negative person. We must keep smiling Best wishes and thanks again. Norma.
Thanks for replying Wendy I have been to a stroke specialist numerous times I dont think they know what to do for me. Its a case of you are on your own. Norma.
Always good to talk Norma, you might be interested in some very good you tube videos , BRAIN ATTACK MUSIC .
By ex musician, cerebellar stroke , 8 years ago , I got some very helpful advise from. Thanks David.
Hi, Like you Norma, strange feeling in my head.......just like a huge pressure, difficult to describe......Been told by neurologist, not red flagging anything, G.P suggested I had cranial osteopathy, which I did (cost me a fortune) did not do anything for me, still there. I can have some good days when I think its gone, then bang it comes back again!! I also have the unsteadiness as well. I am learning to live with it (18 months post stroke) but it is so unfair that we have to live with these problems, there has got to be a reason for it, but I feel no one is interested. I hope this is of some help to you to know that there are others like you out there. Sorry I can't give you any answers.
Keep your chin up. Jane.
This may reassure you but I'm in my seventh year of recovery and the instability you mention is still with me but only slightly. In the early days of walking to get my attention diverted would have caused a tumble without doubt. Friends over here have a bad habit of tooting you when they pass in their cars. I have to completely ignore this friendly gesture!
I expect some more improvement but as long as I'm careful all should be well.
Thanks Jane yes it is very difficult to explain to anyone what it feels like. Mine never goes away but some days I feel I can cope with it and other days it causes me anxiety which dosent help at all. B ut we have no option but to carry on and the doctor is useless doesnt understand at all what it feels like. Thanks again for replying it does help to know that you are going through the same things. Norma 81 yrs. but I dont think I look that old bragging again.
I wil have a look David and thanks very much for the chat. Norma.
Thanks for your reply Norma. It doesn,t matter what age we are, just shouldn't be going through it!!! But what can we do.......by the seems of it nothing.......let me know if you ever get any help for it and I will do the same.
Take care, Jane.
I get a few odd head sensations, awfully difficult to describe. The easiest is the tightness I feel sometimes, some kind of pressure but unable to work out what sort. I also have vision issues, steropsis, blurriness and some double-vision. Some nights my head just doesn't feel right, kind of like it is buzzing or fuzzing (fizzing?) but not. I don't know if this is a result of tinnitus and fatigue working together. I feel a bit like a blinded dalek sometimes when moving, unless I really knit my brow and concentrate, that often makes me feel better. I had a stroke seven months ago, ischaemic cerebellar. Oddly, sometimes massaging my head lightly or scratching gently offers some relief, I do this at night, perhaps the sensation distracts whatever it is going on inside. I haven't had it checked out yet, but plan to. I know that headaches are very common with stroke survivors, so it could be a kind of headache.
thanks Rups iit is very hard to descrbe the feeling but I will try rubbing it I will try anything if only I could find something that would get rid of it. It is very disabling the trouble is nobody can see it and they say I look well I wish I was I cannot remember what feeling normal is I feel like a robot sometimes especially when we go our afternon walk. i dont go far as walking feels strange. I wonder if I am all there sometimes. Best wishes Norma.
Hi, I am 4 years post stroke and still have days when I feel very strange, for no apparent reason. My stroke left me paralysed on my left side. I walk with a stick but find that whilst walking I am unable to look around, it takes so much energy to concentrate on putting one foot in front of the other, that if I want to look at anything, I have to stop.
I am unable to go outside alone. I would never trust myself to cross the road safely, which is very upsetting to think that I will always need to be accompanied. I was a very independent person before my stroke and even after 4 years, I still find this nightmare very difficult to accept.
I also find that if I'm in the car and my husband points out something, my brain is too slow and we've gone past by the time I've realised what I'm supposed to be looking at !! Very frustrating for both of us.
I am also unable to turn suddenly as this affects my balance.
Sorry I can't be more positive.