Garpbentin increase

Good evening everyone.

As you know I take garpbentin and amertriptyline quite a concoction including my stroke drugs.

I’ve had quite a lot of pain everywhere and tingling so they upped my garpbentin from 900mg per day to 110mgs per day up until today.

I’m still suffering and tomorrow I have to increase again to 140mgs a day. To see if this has any effect on my nerve pains. If it doesn’t they want me to increase again to 170mgs a day.

My question is anyone else taking this high dose and do they feel better for it? Or a bit tired and dopey?

Thanks for reading kind regards Loraine :grinning:

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Hi Loraine, so sorry to hear you’re still suffering despite the meds increase. I don’t have experience of taking these meds so can’t offer any advice but just wanted to say i hope they can find a solution that works for you soon. Being in constant pain is rubbish.
Best wishes Ann xxxxx

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Thanks @Mrs5K ne too I’m hopeful that it will help me soon. Pain everyday is debilitating. Kindest wishes Loraine x

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Hi Lorraine, sorry to hear you’re still having a tough time. I don’t take those meds so can’t advise but hopefully either they get the right dose or find a different combination that works.

Fingers crossed for you :crossed_fingers:.

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Shwmae Loraine,

Sorry to hear this is still taking its toll on your well-being. Have they suggested Pregabalin as an alternative? I think we had discussions about the statins. I get what I assume is nerve pain in my toes when I bend them. Only a recent development but it is curious, albeit, quite painful when it flares up.

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Hi Loshy
I was taken of Garbebtin 600mg daily dosage & given x2 medication they felt was more inline with my tremor though have been told by the specialists my tremor all though severe is not Parkinson as there is to much fluidity in my joints . That was good news for me as I wrestled with the thought for months it was … PHEW!!
The new medication I’m now taken as with all medication it’s trial & error to see if this or that works is only now 5 days into its course & have been told it’s takes a week or 2 for the medication to settle & do whatever in the body . Clameapin & Mazepune .

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If I stretch my toes it’s a tingly feeling. @Rups.

Yes we did discuss Statins I’m now on ezetimibe. I’m just upping the dose of garpbentin and see how I am in next 2 weeks.

Pain is debilitating plus stroke makes me feel ill all the time and someone up in heaven is unkind to me.

Just had covid and flu jab so, hey ho bring it on!! (Reactions)!

Kind regards Loraine

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@Jordan @Ingo66 thanks for reply’s.

I think it’s the best one for the spinal and lumbar and cervical stenosis. It’s driving me nuts!

They are looking into ME when I get an appointment but also women of a certain menopause age fibromyalgia too.

That’s a relief for you Jordan how long did they think Parkinson could have been the diagnosis? Glad it’s not for you.

Life’s a pile of s•€t when you look at :musical_note::musical_note::musical_note:
Always look on the bright side of life (whistle)
I bet I’ve got you singing it ha ha.

So as I say I’m trying to keep going! I appreciate all the thoughts and words from everyone on our SS forum.

Bestest regards to you both Loraine

Hi @Loshy sorry you are feeling so bad. I don’t have any experience of Gabapentin as I opted for Pregabalin but I just wanted to reach out and send my support and love. I don’t like to think of you as feeling so bad and so wish I had some wise and more helpful advice as you always have for me🙏

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Hi,
I am on 900mgs, three times a day and have been for about 7 years. It’s difficult to say whether I feel better for it, as I’m nervous about reducing it. I do get tiredness, but can’t say whether it is post stroke fatigue or the meds causing it. When I was building up to this dosage I used to get very tired and experienced strange dreams (sometimes just when I had my eyes closed but still awake). I’m thinking of seeing my GP to get advice on reducing the dosage/stopping completely just to see how it would make me feel (couldn’t have done it during the pandemic) because I hate having to take all this medication if it isn’t helping.

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@DDMH thanks for the very kind words, I’m just full from my toes to the top of my head of pains and fed up with it.

Thanks for your reply too @MinnieB this was my dose 900mgs per day but now it’s increasing. Good luck with reducing let me know how it goes.
Best wishes to both of you loraine

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So sorry to hear you’re having such a rough time of it Lorraine, I don’t take that med so have no experience to offer.

I hope it does the trick for you, sending you a virtual hug :hugs:

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The 900mgs is 3 times a day, ie 270mgs a day. I wish you luck.
Minnie

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Sometimes life is like being on a boat during a tempest, just got to hang on until the skies clear. :grinning:

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Thanks @MinnieB @Mahoney ill take that hug.
@Rups I agree thanks everyone :smiling_face_with_three_hearts:

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Hi @MinnieB would you mind sharing what symptoms you had before starting Gabapentin and how has it helped?

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Every time I do any sort of exercise, the muscles on my affected side get really sore, a bit like the feeling of bad sunburn, but in the muscles instead of on the skin surface. I still get it, but not quite so badly (most of the time).
It was diagnosed as Central Post Stroke Pain.

Hi Loshy I’m on 1800mgs gabapentin a day although I try to manage with 1200. I’ve got post stroke pain diagnosed over the phone. Pain all down my left side. Not sure medication makes that much difference. Dr suggested I took amytryptyline when I first had the pain, but I’ve had it before and makes me depressed and “zombie -like”, so said ‘no thanks’. Dr said I could take 900mgs at bed-time but my husband Ian said that it was like trying to wake someone unconscious in the morning so have gone back to 600 at night. I’ve been on 1800gms a day for probably over a year. Don’t know if that’s any help.
Mary

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@Mary_Wilson thank you for the kind reply and advice.

I’m now on 1200 and next week raising to 1500. I’ll let you know how it goes. Thank you kind regards loraine

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Both my husband and myself had stroke this past year …but were given nothing after, no meds except keep a check on blood pressure. My husband takes lots of meds at breakfast time as he had a heart attack few years back and is also diabetic, so a handful every morning …however, we both take amitriptylene, which helps him with diabetic pins and needles feelings in legs … he takes just one 25mg tablet each night … I take two 10mgs tablets on evening for something else …neither of us have taken gabapentin for pain, but I know others who do …I guess I am a bit of a pest for doctors as I question everything they want to give me, and have been known to say “no thank you” if not happy with something …

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