Hi I’m coming up to 1 year stroke survivor but I’m feeling anxious in case it happens again anyone got any advice xx shaz
I’m coming to my 1 year of surviving a stroke feeling anxious and worried it will happen again…!!! Anyone got any advice for me…! Shaz
Feeling anxious it is coming up to my 1 year stroke survival and feeling anxious in case it happens again. Anyone have any advice
Sorry you are so anxious. Anxiety does pass, but milestones like one year should give you hope not dread. I had a big stroke six years ago and was anxious for a good two years, but then it faded. Ironically after nearly five years I had a second small stroke, but more of a TIA. That was resolved quickly and my medication changed accordingly. Mind you I am now nearly 79 so I just value each day and live for that. Please enjoy your life.
@sharonjd69 anxious is not good for you. I’m the same it’s 1 year March 17th for me plus my weird turn last August. I keep waiting for something to happen too. I’ve started doing mindfulness deep breathing to waves music or calming music I tend to do 3 minutes on a morning and clear my head before start of day then about 8 pm 5 minutes to calm me down before bedtime. Look at the positive side. Your on medication and should be up to date with appointments. Find something to distract you-walking, colouring i paint by numbers which is a big help to me. I wish you luck and send positive thoughts and hugs Loraine
Hi @sharonjd69, I think it’s par for the course for SS to feel worried it’ll happen again, I know I do.
I’m doing all I can to live a healthy lifestyle, do a little exercise, eat decent food, have cut down/cut out salt sugar saturated fats etc, take the medication regularly and the rest Is down to genetics, which I can’t change.
Hopefully that’s enough… only time will tell.
Try not to get too anxious, I know it’s easy to say but harder to do.
Thank you all for the replies and help I’m planning a day trip out with hubby to the Cotswolds xx
@sharonjd69 Sharon that’s great news very exciting too. Remember you need rest days too. When are you going? Look forward to hearing all about it when you get back. Kind regards, Loraine
Planning on going Saturday hope the weather is nice as I really feel the cold in my left side will wrap myself up like an Eskimo…haha
@sharonjd69 exciting have a great time hope weather is going to be kind to you.
Shwmae @Pontwander, sound advice. I too went back into hospital after stroke with fear of symptoms mimicking another stroke.
Shwmae @sharonjd69 (Shaz), I went through this repeatedly for about eight months after six TIAs and a major stroke knocked me for six. I approached it differently at different stages. At first, I thought, I’ve had a stroke, I know the symptoms, if I am having another one I can prepare myself for that. Secondly, came the ‘If I have another stroke, so be it, I’ll have it wherever and whenever it happens, might as well just role the die and see what occurs’. Finally, I started to do what @Pontwander has suggested, attune myself to my body, and I have also added CBT to this which is thankfully helping. I have dealt with panic attacks for most of my adult life, these mimic heart attacks or existential throes of distress, and are quite unpleasant. The weird thing about them is that they are all in the mind, but it is pragmatic to disseminate what is in the head, causing physical symptoms, and what are actual physical concerns. Not so easy, but it is possible through relaxation and managing cyclic thoughts which will, as their nature, go round and round, and also become worse if not attended.
Also, it’s worthwhile noting that, although not out of the woods (at least for five years), a stroke survivor is out of the critical period for a secondary stroke after one year, according to the medical experts. In some sense, confidence in our survival instinct is imperative, but also it should be noted that a stroke is a shock to the brain, it’s fear and anxiety mechanisms remain on high-alert, telling us to be careful of simply just existing. It’s our seat of consciousness, it doesn’t know where the blow came from, only that it did. In many ways, people across the world have experienced traumatic brain injury, sometimes a genetic disorder or caused by trauma. And there are many examples of those who have experienced that, and gone on to lead fulfilling lives.
I find your question very interesting and confronting because it’s at the root of many a stroke survivor’s fear. I do feel, however, it can be overcome with time and perhaps some CBT or some such thing, like mindfulness. These techniques offer a protocol for the mind moving forward.
Hi Sharon – Do the doctors know what may have caused your stroke? Knowing the cause can bring some peace. After my stroke I saw a cardiologist and neurologist. The cardiologist found I had afib, which had caused the stroke. I was put on meds right away to treat that and blood thinners-- so I don’t worry any more. I figure: they found the cause. The cause is being treated. I did everything I could. Still, though, for several months after my stroke I had a lot of anxiety. So, I saw a therapist for several months. It helped to talk to someone that wasn’t family about my feelings. She gave me some coping tools that help (Self talk with positive suggestions.) I had a mantra which I said to myself constantly: “Every day in every way I’m getting better and better.” (and I was!) Every time a worry got into my head, I replaced it with my mantra. Eventually, the anxiety faded as I got on with life. I’m sure yours will, too. Jeanne
Hi it’s shaz we don’t no what caused my stroke I had heart monitor and different tests all came back clear. The only difference was I had my first covid jab the AZ and after I had that I had really bad headaches every day then 3 was later I had my stroke xx please note that I am not anti ax might have just been a coincidence xxx
@sharonjd69 I had my Astra Zeneca jab on 5th February 2021, I had a cerebella lacuna infract ( back and deep into the head small arteries) 17th March . I had a nasty reaction to the jab which made me feel very ill for 5 weeks headaches couldn’t get out of bed the pain was awful I still believe the AZ caused it though doctor said it’s the wrong stroke!!” Only Cerebral Venous Sinus Thrombosis is the stroke you can have”!! A load of bull!! No one knows as we were all experiments. I’m not anti vax either. Loraine today is my 1 year anniversary so to speak
Hi there is a condition called thrombocytopenia which can be caused by a injection I asked my consultant if jab caused the stroke but I got the answer no but I asked him for the proof he couldn’t answer…!!! I no in my heart and body what caused it but I have now accepted that I will never find the answer…!!! Even my own GP was gob smacked…!!
Hi all, I also don’t know what caused my stroke. I have had 2 open heart surgeries in the past for a bicuspid aortic valve (born with) but the most recent was 2007. That’s what they initially thought may have caused it which I thought was a bit far fetched. I also had my suspicions about AZ. I had my 2nd dose on 6th may last year and had stroke on 8th June. They say not related but I guess they mean not related to the one link they know about, however this doesn’t mean there aren’t other less common AZ links.
I now have an ILR implanted to monitor my heart rhythm to see if that gives any clues.
I’m pretty sure there are lots of people wanting to know the reason for their stroke but the truth is they don’t always get an answer. I can only keep my fingers crossed and hope that the ILR is another safety net along with the medication to keep me safe.
On that happy note I wish you all the best with your recoveries and hope none of you have any further health issues to deal with.
Good luck all
I agree that there are lots of people who never know what caused their stroke. Mine was over three years ago, so before Covid, and the medical people have never been able to identify why. It is a bit disturbing but in the end I’ve had to accept that it happened. I take the medication and live a healthy life and hope for the best.
Hey @Loshy. This is one anniversary non of us would ever anticipated or looked forwards to. But you made it, in your own words you have stuck your middle finger up at your stroke and got on with it. ( Still smiling at the image of that). You provide great support on this forum, only wish this hadn’t happened for you to be here in the first place. Hope today has not been too difficult for you, Julia x
I second that! Not sure I should say happy anniversary but appreciate the support you give.
Hope you’re doing okay today and remember you beat the stroke b#@!&# !