A few years ago I had an MRI to find why I was so dizzy, nothing was found other than the fact I had had “Silent Strokes” at some time unbeknown to me, which left lesions on the brain.
Fast forward to 2022/2023 and I have had the worse head type shocks and severe dizziness. Had CT Scans and it has shown I have Subclavian Steal Syndrome and blocked carotid artery, this has been causing me a lot of grief for some months as the Vascular Team are not quite sure and wants me to see a Neurologist. I am in West Wales and the waiting list times are ridiculous I’ve been on the list since January and there’s probably another 10 to 12 months to wait. Decided I’d couldn’t wait this long as symptoms are getting worse so tried Private Hospital local to me and the earliest I can get is November 2nd, originally 26th October, but got rescheduled.
Has anyone had anything like this and how do you cope with the dizziness.
Thank you for reading.
You have my sympathy. I get a lot of dizziness & at this stage don’t really know what’s causing it. I’ve been waiting since last Nov to see someone. I am not sure I cope with it well at all & often just have to sit & wait till the worst passes. I am trying, slowly, to just get on with things but that is easier said than done as i am sure you know.
I do take anti nausea meds to help with the sickness that comes with it.
Really hope you get yours sorted soon.
@Janwhy My first and immediate symptom of stroke was severe vertigo. The whole world was spinning. They treated me at hospital with an anti-vertigo drug. It was actually the stroke causing it…an ischemic stroke. Before the stroke, for a few weeks I was having little dizziness episodes.
The scan afterwards found the stroke. The scan is all-important. Good luck to you. That waiting list is ridiculous. All the best to you.
Thank you for replying, I have not been around much as was taken to A&E on Wednesday when I had an episode of severe dizziness or vertigo, it felt like I had been hit over the head with a baseball bat and knocked sideways luckily I fell onto the arm of the sofa which has loads of soft cushions top lip went numb like at the dentist and felt swollen and my speech was slurred.
Now have had phone call from private hospital and my appointment has been moved from 2nd Nov to Thursday this week, to see Neurologist.
Sorry to hear you’ve had to pay a visit to A&E. Hope the dizziness has eased a little for you now. It’s an awful thing to suffer with.
I’m pleased they’ve bought forward your neurologist appointment. Write down lots of questions & notes so you get answers to all your questions.
Hope they can start to sort things for you soon.
Thanks for your reply and advice, I will write somethings I need to ask and also the answers, I seem to be very absent minded and forget the right words even though I know what I want to say, it’s so frustrating.
That sounds like a touch of Aphasia, something to question the Neurologist about on Thursday.
Thank you, something else for the long list.
I struggle too with being very slow to find the words. Im sure that ive lost half my vocab. Sometimes i say the opposite word or a word that sounds like the word im looking for. My speech therapist has said it is Word Finding Aphasia. Think your spot on!
Yeah I have that too and it’s a complete bugger in some circles but I have found that most people are actually pretty tolerant and will wait the 30 seconds it takes me to struggle through and I very often fill the gap with a wrong or inappropriate word and just have to leave it to other people to recognise that I didn’t find the word I wanted .
It’s one of the things that bugs me the most I can’t express myself fluently in real time
C’est la vie
Stroke is a permanent change to your reality but the new path you’re on still has opportunities for great reward
Like @SimonInEdinburgh, I have aphasia too, which is why we both recognise these symptoms I often use the term ‘words fail me’ these days
I come from a large Irish family, and when we get together I spend more time listening than talking, because it’s hard to get a word in edgeways in a rapid fire conversation where everyone talks over each other to be heard
Ah ha ? So is emerald eyes a corruption for emerald isles?
I honestly would not say that having ‘met’ you last week @SimonInEdinburgh !!