Good evening everyone,
Been leading up to posting my story for ages. Adter lurking for the last few weeks, finally think I’m ready.
So hello, my name is Emma. I’m a 40 year old mother of three and a midwife by profession. I had my stroke almost 2 months ago now. Here is my story.
I had a fall on the 30th October where I bashed my face and broke my nose. Silly accident with my labrador pulling me over.
Then on 12th November I was at football training with my son when I just felt dizzy and had a pain in my head. A friend got me home and my dad took me to a&e. 8 hours and a CT scan later I left with a diagnosis of delayed concussion and advised to visit a eye hospital about my sighte. But was closing on the day before I could get there. So I was given 2 options - eye hospital on sunday or hospital clinic on monday. The sunday being my twin daughters birthday I didnt want to go so waited til Monday. The Sunday I was sleeping on / off all day and being sick alot. Missed their whole birthday anyway. Monday felt absolutely fine other than a bit blurry vision wise. And No called from the hospital re the clinic. So Tuesday Mum took me to the London eye hospital. They said everything was fine with my eyes and potentially has a stroke and return to a&e. Well my Mum and I were laughing ‘as if’. Anyway back to a&e - triage doctor ‘we wont do bloods or anything as we did them the other day, I dont think its a stoke you dont have the symptoms but as they’ve askes us to investigate we will have to’. She ate those words 4 hours later when she came and told me I had indeed had a left sided occupital stoke. Cue MRI, CT, neck ultrasound, another CT, more bloods and admission for 4 days before being sent home on early discharge protocol.
The stroke doctor said potentially I had an injury in my neck caused when I broke my nose which a clot had broken off and travelled to my brain. Which was confirmed after all the MRI resulrs were in.
Fast forward two weeks and I just got into bed and felt a weird sensarion in my head and arms. Back to A&E and a 10 hour wait to be told I had an expected Heammoragh caused by the blood thinners but wasnt a concern.
I had an eye appointment back in December that confirmed visual field loss on the right hand side in both eyes. It doesnt feel as if my left eye is affected but I can argue with the tests. I have my DVLA appointment next week and am scared stiff. All along Ive said I’ll start a new career but I dont want to lose my independence and driving. (Which I now feel is almost certain, so am prepared).
Lights tend to annoy me. Sitting in my living room with the main light on I feel like Im squinting and makes focusing harder. Ive been on at my partner for about 2 years for a lamp, it took for me to have a stroke for him to get me one ha ha
My emotions are all over the place. Just bloody thinking about emotions have got tears in my eyes. I mostly am feeling out of control. Not driving is my biggest problem - I am a community midwife so used to being out and about in my car. I dont even know if I will be able to continue working as a midwife or not (I have an occupational health appointment on Friday).
Panic attacks - twice I’ve been back to hospital convinced something else is happening but really think it was panic attacks. Now almost everday Im having an episode of this strange increased heart rate, hyperventilating, out of control feeling. I hate it. I have done a referal for talking therapies today.
Wow, I wonder if youre still awake. Sorry Ive gone on a bit here. Ill leave you on that note, but thank you so much for taking the time to read my journey so far.
I dont feel anyone quite understands.