Dddmy old friend

Living with hope

Reluctant friend stopped working on the stroke day 24/0/2021 not moved since bar the thumb and a reluctant lift to my chin , but no motor skills major or minor


He was always my best friend and after 59 years of use the stroke has taken my friend from me.
I refuse to leave him out so no matter how small the job the useless arm and hand are I try to make it take part in the hope that one day it may wake up and join the party.

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That’s exactly what you need to do. Keep trying to use it even if it is just to hold a yoghurt pot. It reminds your brain it’s still there & you never know one day it might surprise you x

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Yes Mrs5k I sincerely hope so

Best birthday present I could ever have.

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@mrfrederickson

As another of those with one side pretty much useless your photo is a great reminder.

I find it takes an effort to involve my right side, but giving it that bit of attention does seem to produce results.

There is no instant cure, but I find noticeable improvement that makes me feel optimistic.

There is no plateau here!

Keep on keepin’ on
:writing_hand: :grinning: :+1:

photo courtesy of @mrfrederickson

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With my TIA’s I only got a sampling of what it must like for the likes of you and @mrfrederickson. My arm and hand was more or less back to full range of motion within 6mths. But it is not gone!

There is still weakness there down the whole of the right side. So one of my fears is if were to incapacitated for any length of time, would all my hard work be undone :thinking: I’m not tempted to put that thought to the test, so I’ll just keep on keeping on :sweat_smile:

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Sadly the full stroke takes a large part of your normal away be it left or right side,

Only now with the aid of the physio I am in picking the damaged muscles not used in three years and improperly used as a coping strategy straight out of the stroke.

Can’t stress more highly that good exercises repetition and as soon as you are able once the stroke conditions have subsided sufficiently.

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Although 50% of my body was paralyzed, my arm was remapped by my Chinese Dr. 10 days after my stroke. This means I regained 90% movement from the beginning. Tactile sensation and proprioception… took / is taking months to regain (and still feint).

However, all the muscles around my scapula took hard work, and constant attention to rebuild. If I don’t stretch my arms fully 5 times a day it starts to ache. I have a daily bare minimum routine with weights, rubber rings, poles, bands, and isometric exercises, and Qigong, stretches and swings. I can lift a 3kg weight now. Still, there are passing aches and pains while I do my exercises. Arms with little or no movement must be very painful.

A leg is a much simpler a mechanism. My leg was not remapped, so lags behind my arm in terms of progress. Atrophy of former muscles takes 6-8 months, roughly, then with more daily rehab I started to build muscle. My leg is twice the width it used to be (which was half the normal width)… you might say it’s back to normal in girth. Except that I get spasms, locked muscles, knots, stiffness, paresthesia and other ailments to work through. One thing is clear; not moving is a no no. It’s not an option.

The whole process in terms of rehab takes extreme stamina and much will power. A good team helps; my team includes 2 physio therapists, one due in about 30 mins. In terms of general condition, I’m not doing too badly especially when I remember that 50% of my body started off 100% paralyzed.

Where will I be this time next year? That depends on how much, and what I put into my rehab right now. So, off to warm up my muscles and continue enjoying the process of reclaiming activities and my life. Happy work out to all those that need to find the motivation and drive to do it every day !!

Good luck, Roland

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I second that! Even when I’m on the computer reading and responding to posts on here, I’m constantly up and down doing other things around the house just to maintain mobility. Gone are days when I could sit through a movie without having to get up and move around :smile:

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I agree. I can just about sit through a movie, but I’m much better for taking a break or two and oiling my joints

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Thanks Roland
Certainly worth a shot.

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You might practice 1 million times, Mark, but maybe the millionth and first time, your hand will come alive. Just keep it up! Repetition is key.

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Just like babies learning to walk… they get nowhere for 15 months, then suddenly they pop up and stand upright

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