Confused - Stroke at 41

Hi everyone. My first message here (or anywhere to do with this actually).

I was having what I thought were post COVID issues last June, however as soon as the respiritory consultant saw and spoke to me in person, he knew and refered me for an urgent MRI. Within a few days, I was told I’d had a Cerebellum Stroke. I believe this was a silent stroke, as I did not suffer from normal classic symptoms at a specific time.

Back in June/July August and September, by symptoms were all to do with ‘brain slowness’, eg unable to speak quickly, unable to focus or concentrate, unable to drive etc, and also MASSIVE tiredness. I would regularly and uncontrolably fall asleep when doing something, talking to someone etc. I once nearly fell asleep once walking, which was very odd. That was all before I actually had the diagnosis of Stroke, which I received in September.

Since then, to add to the confusion, I let my neurologist know that I had a previous MRI scan around 4 years ago after a car accident (we were rear ended by a drunk driver). He immediately asked for the details and emailed requesting sight of those scans. He then called me in a week later to let me know that the Cerebellum stroke shows on the MRI scan from 4 years ago. How it wasn’t seen then, I still don’t know…

All in all, I was therefore told that I had a Stroke in the past (potentially 4 years ago due to this car accident). However, I had absolutely no symptoms then, apart from ongoing near daily migrains and tiredness, which lasted approximately 4 months.

To make things even more confusing now, whilst the slowness at talking and thinking is under control and much much better than it was 6 months ago (it’s still not the same it was before June 2022), around October I started developing quite bad motion sickness, dizzyness and co-ordination problems. These were often bad, and stopped me driving again, but also stopped me being a passenger in a car. This got to it’s worst after some vestibular testing last Monday, when I developed double vision for approximately 5-6 days. The double vision thankfully disappeared over the weekend.

Approximately 2 months ago, I started developing some physical symptons however:

  • Dizziness and lack of coordination has got worse. I have stumbled a number of times now, and in the last 2 weeks now, have fallen and/or walked into objects a few times.
  • noticeable weakness in my right arm, painful arm when doing simple things such as brushing teeth, hoovering etc. Arm sometimes feels like someone is hitting it.
  • weakness and pain in the fingers on both hands - they almost feel bruised to the touch, if that makes sense? Also, my fingers and hand feel very cold a lot of the time.
  • constantly mixing up my words when speaking
  • Only able to drive very short distances, and only if I’m feeling OK at that time

I’m not sure how to explain this, but a lot of things also just feel wrong at the moment. For example, I walked into the side of a door yesterday and banged my knee really hard into it. At the time, I was in massive pain, but it only lasted about 20 seconds. After that, my knee (and in fact lower leg) almost feel like they’re not attached/not there anymore?! I can still feel it, move it etc, but it all just feels weird.

I’m seeing my consultant (after some time now) this Thursday, so hope to get some more answers then.

Initially, it seemed to be a case of lets see how it all goes - they were expecting it to improve quickly, however now that things seems to be worse rather than better, I have no idea what to do…

Thanks for listening,
Mal

@malkapadia welcome to the forum. That’s some medical history you have. Stroke doesn’t always present in the form of the classic symptoms - mine didn’t either.

I’m not sure how your original stroke was missed but it does happen sometimes…guess indicative of how busy / understaffed the NHS are. That’s no excuse though.

Your current symptoms sound like they need investigating further. It’s good that you have an appointment on Thursday. Make sure you insist on whatever tests you might need for them to work out what’s going on. Write everything down before you go so you don’t forget to tell them everything.

I kind of get what you mean about your knee/lower leg. I have on a couple of occasions felt like my legs don’t belong to me. It’s very weird but usually resolves by the next day.

Good luck with your appointment & I hope you get some answers very soon.

Best wishes.

Ann

Hi Ann,

Thank you so much. It’s nice to hear that what I think sounds silly about my knee doesn’t sound that odd to everyone.

Yes, I found that during my first two appointments, I just couldn’t remember what I wanted to say, so I’ve made a list to go through this time. It;s a bit of a long list so I will go through and sort it out this evening before my appointment this Thursday.

I’ve always been a fiercely independant person - that person that other people come to when they need something. I run my own business and would say I’m the foundation of my family (wife and two boys), so I’m very slow in accepting any form of outside help. Hopefully asking in this community is my first step! I’m not sure if I’m too proud or too embarrassed to ask for help, or if it’s a fear of letting those close to me know how bad my pain is at times.

Thank you,
Mal

Shwmae @malkapadia, sorry to hear you’ve joined the cerebellar stroke club. Cerebellar stroke can, commonly, be caused by trauma, as was mine. These later symptoms you describe are classic cerebellar stroke symptoms, more specifically the dizziness and nausea. The cerebellum has a major role in locomotion and perception. But I wonder why these symptoms have just started to occur? A silent stroke does indeed cause damage but does not show obvious symptoms. I hope you get some more medical feedback, in the meantime, croeso, and please pitch any questions or concerns here, we are all in the same sea, albeit, different boats.

2 Likes

@malkapadia hi welcome to our forum and as @Rups said the cerebella strokies. Like you and Rups mine was cerebellum area and I had quite a few symptoms you described. Then 6 months later (I call it a turn) had the motion sickness and dizzy symptoms to be told it’s vertigo which I know it’s not.

I find if I bang myself it’s excruciating pan for a while and I have pins and needles in my toes underneath.
I’ve also had trouble with my hands and after a nerve conduction test diagnoses with carpal tunnel in both hands m, which I’ve had an operation on both hands and right hand is much better but left is still painful but not lie it used to be.

Hope you get sorted with consultant let us know how you get on.

Kind wishes loraine

Hi @malkapadia, pleased to hear you’ve got further appointment with your consultant, hopefully you’ll get they’ll be able to give you answers about what’s happening with your symptoms.

Best wishes

@malkapadia

Hi Mal,

I was also a very independent person & it took me a while to get used to the idea of having things done for me. It is important that you do let others help though. Trying to do too much could be exacerbating your symptoms.

Really hope you get some answers on Thursday. Let us know how you get on…if you want to.

And no your knee doesn’t sound odd to me. It is a very weird sensation though. I thought it was me being silly when I had it. Almost a relief to know I haven’t gone mad just yet :rofl::rofl:

Best wishes

Ann

1 Like

That’s a great analagy @Rups . Same sea different boats!!!

1 Like