Hi @iLondoner, welcome, so sorry to hear re this. I’ve been discharged twice now in the last year post stroke ‘At Risk’ back Home. I feel for you, as when you’re ill/caring for someone not well …. These Care ‘structures’ should be in place and functional in the NHS. 😵💫
On one of the ‘discharges’ (they didn’t even do that properly), I stood my ground assertively (although lying down in the hospital bed lol) … and REFUSED to go home as I knew I wasn’t being discharged properly and would’ve been at risk’ at Home. Very distressing and exhausting but worth it.
I managed to find out that you can speak to a ‘Site Manager’ whilst you’re still in the Hospital if you’re having any issues! Also the CEO is an option of course. I’d already spoken with the Ward Matron, or should I say she spoke TO me, and won that battle.
Anyway, I managed to get another night at the deluxe hotel … not … ie zero care and a lot of ‘angry looks’ if anyone did venture near me. I honestly was scared.
By the way, this is just what I did, and it’s just a suggestion…disclaimer
The next day was just as bad, and still wasn’t discharged at all, this time … I just rang someone to pick me up in the evening as the staff were treating me horrendously and I was once red I’d have another stroke.
There IS a procedure the Ward should follow, maybe the Stroke Helpline could direct you on that? Age UK?, Silverline? Local MP, Carer’s Association, PALS (based within the Hospital … they should intervene on your behalf whilst you’re in there, and you can also put a complaint thru them re the award, Staff etc). Adult Social Services at your local Council might be another Avenue as in getting an urgent Social Worker. Try to get an Advocate, perhaps ‘SEAP’, to speak on your behalf. The Advocacy People. ‘Rethink’.
Your GP might intervene? There’s also something called a Community Matron. You should be allocated a Stroke Nurse, and be assessed by an OT pre discharge, given meds to last you till sorted with GP before going anywhere. There are also lots of agencies that the Hospital are ‘supposed’ to set you up with to ‘settle you back in at Home, for up to 6 weeks in some cases. Eg ‘Homefirst’? It might depend on which part of the Country you’re in though. If there are speech, swallowing, language issues … then a referral should be made to the ‘SALT’ team (Speech and Language Therapy tea.
NO ONE, in my opinion should be sent home in this way … shocking, again just my opinion.
Overall, if it was me … I’d stand my ground as it were, ring or go physically to the PALS Dept in the Hospital to start with. Don’t be put off. But, I’m not claiming to be an expert … just what I remember from the trauma. So it’s up to you. Btw … my local Hospital has been like this since BEFORE Covid … very often that’s used as an excuse.
Failing all that, slip the word ‘going to the Media/Press’ into a conversation and that might help (I didn’t say that btw ahem!).
So sorry to hear of another distress story, and I really do wish you well. Once you start ringing one organisation (stress it’s urgent), you’ll hopefully find they’ll suggest other organisations that might help).
If no one speaks up, then this shocking behaviour will only continue
, but again just do what you can, as you’re under a lot of stress. And be really clear, you feel you can’t help at Home … then someone HAS to step in
Love to you both, hope all this makes sense,