My dad has suffered a very rare stroke (CVST) 16/03 with extensive clots in many of the vessels in his brain. As it is so rare, I haven’t come across any posts with lived experiences of CVST. I would be keen to hear from other people/family members who have been affected by CVST.
My dad is currently in hospital, awaiting a bed in a rehab facility. 4 weeks on from his stroke, but only 2 weeks having been awake (first 2 weeks on ICU in an induced coma).
He has lost all movement in his left side but can feel everything and has slight weakness in his right side (likely due to lack of exercise for a month rather than impact from the stroke).
His speech is good, slightly quieter than usual but not slurred and he remembers everything from before the stroke. He then has a period of 3 weeks or so that seems to be blurred/blocked in his memory from just before the CVST hit and waking up from the coma.
I look forward to hearing other peoples experiences