About the Share your story category

Hi @IanM your are very welcome, so glad you’ve managed to find to haven of solace, where patience and understanding are in abundance. So never feel the need to apologise for errors as are all in the same boat even with that :laughing:
I have aphasia but spelling isn’t so bad, but I can have a tendency to miss words out and sometime my fingers can type a totally different word than the one I’m thinking to type. :confounded: Ahh, it is what it is :crazy_face:

Be sure to read the Welcome post at your leisure, several members have put together the kind of things you may experience in the first year. All stroke are different but there are some basic similarities in all stroke warriors. There’s a lot of useful advice and support in there to be had Welcome - what we wish we'd heard at the start

Maybe you could get your wife on here too as this is also a site for carers, their need is just as great as ours. It would certainly help her in her understanding of what a stroke entails if she were to read the welcome post too. And it might give her peace of mind to be included, just to know what can be expected going forwarded :smile: My hubby would hover, especially when it came to using stairs, but would never intervene unless asked. It the best way to relearning if you have to fend for yourself as much as possible. I wish you well in your recover :people_hugging:

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Hello @IanM
Welcome to the forum. I’m sorry you had cause to join but you have landed in the right place :slight_smile:

This is the place to celebrate your victories, ask for support, rail at the world for the unfairness of anything, just generally let it out or ask questions because stroke support forums seem universally to be totally tolerant.

Reading the posts on here and searching them (some details in the welcome post emerald has pointed you to) is the best way to find out that everything your experiencing is normal to some of us and some things are normal to all of us. Again as emerald says your wife needs both support & her own understanding. Again there are resources on here some of which are signed posted from the welcome.

I run a zoom on Thursdays at 1:00 p.m. details here Thursday online 'cafe' also Carers & Young person's that you’re more than welcome to join

Last thought here…
If you’re having a repeated TIAs two questions are in my mind One are your meds right? And two has the underlying cause been found. And the caveat I had multiple strokes that I didn’t realise were strokes and neither did my GP in the proceeding years to the one that put me in hospital. If I knew then what I knew now I would be rather more of a nuisance to my GP until I was taken seriously and I would take my meds seriously which in typical male fashion I didn’t with lasting consequences

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Hi @Seerahjane. Nice to see a lady give her age :slightly_smiling_face:. I’m male 67. Well done on your progress. I had to learn that putting my feet on the floor out of bed (another health emergency) was progress. I was looking for great things and ignoring the small.
I had to go and collect a parcel today. My wife had to come with me. I was scared I would collapse. My legs shaky like yours. My head in a fog. I managed and am trying to hold on to that. For 24 years I was housebound more or less with agoraphobia. Finally 3+ years ago, I was able to go out again. I’m scared all that will come back again as my confidence is getting less. Anyway my arms too are not quite functioning. Strain try to write with a pen. It’s no point saying it’s not hard, Sarah, but I’m still here. It’s only early days yet. I’m glad I came across this forum. Don’t feel on my own now. Hope you improve albeit slowly. Kind regards, Ian.

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@emeraldEyes Hi, thanks for that. My wife has the heavy end and there are times when I make it difficult for her. If I’m trying to do something through a sticky brain and she try’s to help I get frustrated as I lose my ‘‘path’’ of thinking to complete a task. She’s signed up today :slight_smile: . @Deena .She always depended on me to see to bills but our account is a shambles at the moment as I can’t cope with our finances just now. I used to work for one of the big banks but service now is terrible. You try to speak to someone now to get help but decisions are made by an emotionless computer system. No one is either able to think or make a decision anymore. I’ve given up. I feel sorry for all my fellow sufferers of stroke/TIA. The last thing you need is a fruitless ‘grilling’ and hours of waiting for a reply. I certainly haven’t had a good experience. Maybe someone will point me in the right direction or comment. On the bright side I have a £5 note in my back pocket and they won’t be seeing it. :wink:


Hi Everyone.

I had my stroke almost 8 weeks ago and compared to many on this forum I was lucky not to have impairment to my physical movements. I found the whole experience of the stroke terrifying but made a good recovery in hospital and can do all the physical things I used to do. What I have found very difficult is the loss of motivation as previously I could not sit still and was on the go all of the time. I just wanted the old me back again and became very tearful at losing this motivation and energy. The occupational help I received was great and the nurse explained that it would take time for my energy levels to return and that I should rest when my body told me to do so. This I have done and it took me six weeks or so before I could get through the day without an hours sleep to recover from just reading, watching TV or walking. I find walking and being out in the fresh air uplifting but even so from time to time this emotional flood overwhelms me and I just cry for no apparent reason. My wife has been brilliant in supporting me but I worry about the impact this is having on her emotionally also. I have a list of jobs I need to do and I just need a magic pill to give me the drive to attack those jobs in the way I did pre stroke. Nobody can tell me when this feeling will pass and that it will take time but in the meantime I just feel so down about the whole thing. Anyone who has had similar experiences and could share how they managed their way out of this situation would be very helpful. To everyone else I wish you all the very best in your recovery process.

Hi @ColinH
Welcome to the forum although sorry you’ve had to cause the join.

It’s great to hear that you escaped much of the physical impairment that many of us battle.
There may be a small irony.
People are going to say to you “you look well”
Youve yet to learn perhaps what your reply will be “that’s because you can’t see what it’s like on the inside” or some more diplomatic (or more impatient!) phrase?

If you’ve escaped very lightly you may have a full recovery - I’m sure everybody here has their fingers crossed for you that that will be the case. More probably the motivational and emotional will be between permanent and fading over time. If they fade expected to take some months.

Also be aware that while stroke has a dramatic effect in the first few hours it keeps on the life-changing potentials ‘up it’s sleeve’ that come in at various stages - like for example the 4-month possibility of developing central stroke pain, the random aches, med side effects, replacement of recovery fatigue by fatigue for life and other things that we here can point out have been in some of our futures but not whether they will be in yours .

Much of what has been said by the community to previous new joiners is gathered together in the welcome post tap the blue text

Personally I agree with any concern about family & spouses. I think they bear the brunt and have much less support from the system so encourage your wife to seek and to take a support and listen to advice wherever she can find it

I dare say others will be alone to say welcome. I hope you find this forum something you can navigate because when you do it will be a valuable resource during the long road ahead

Caio Simon