About the Share your story category

Use this discussion to introduce yourselves to the community, as well as share your story with others about your own stroke, or your loved one’s stroke.

Well good morning all I’m new to this kind of communication so please give me a chance. My name is dave and I’m recovering from something which i had never heard òf before it’s called a stroke and its taken a large part of my life with it?
This thing has taken most of the things I used to do and used to love and I’m having to now rely on other people to do things I used to do myself,
It all started one morning I got up and the next thing I knew I was in an ambulance being rushed to hospital.
I got up all full of the joys of whatever I was full of the joys of and the next thing was I was laying on the floor of the bathroom and the next thing I know I’m sitting on a chair .
I then get to a hospital only to be told that I’ve got to be moved to another one so I then have to get into an ambulance and be Blue lighted over.
So I’m now in hospital and a week later I come out considerably less feeling all full of the joys and feeling like a huge hole has appeared in my head with nothing in it,
Now a month or so later and ìm feeling somewhat better. I still cannot walk properly but I’m learning I don’t speak like I used to but I’m learning and my writing well don’t mention my writing at least in polite terms. But I’m learning and that big hole in my head where my memory used to be well its still there but its a hole that has to be got round and with all the help I’m getting its gònna
Be one hell of a ride but at least its gonna be a ride that has a purpose.

3 Likes

Hi Dave, welcome to the forum. It’s a shock, to say the least, to discover for yourself or be told you’ve had a stroke. I still can’t completely take it in that it happened to me either.

Sounds like you’ve got a positive attitude and you’ll hopefully be full of the ‘joys of whatever’ again soon.

Stay strong, keep being determined to make progress. Take care of yourself. We’re here if you need support or a chat.

Hi Dave, as Mahoney said, welcome to the forum. We’ve all had strokes in one from or another and I think finding and using this site is probably going to give us all the information we need to get on with our lives. You’re ready for your ‘ride’ now by the sounds of it and the confidence that comes out of your message shows you’re going to keep strong as well, so take care and stay strong. Best wishes.

1 Like

Hi Dave. I had a stroke nearly three years ago now and I still am learning new things every day. It is quite exciting in a way! Walking and talking have had to be relearned, with some success. Writing is another matter as I have limited use of my right hand. I am always hopeful.

2 Likes

Hi there guys and gals this is the first time I’ve ever wrote into a club like this and I guess that this is the first time for all of you so I guess we had better be introduced.
I’m Dave and I am a little confused but then I suppose being in a forum like this we are all confused by all the things going on around us that we get together to try to get some sort of normality out of what is going on around us

1 Like

I also am confused by the new site. I keep on trying and hope that I will succeed eventually! Lilian

Keep trying Lilian @l_platt, don’t give up, we’ll all keep each other on the right track :mortar_board: and we’ll become experts together :+1:

Thank you for your reply. I will keep on trying. My problem is that I am a complete novice and only started to use modern technology after my stroke! I like to talk to other stroke survivors though. Best wishes Lilian

2 Likes

Hello Lilian (@l_platt) I think your attitude is spot on. We are going to rebuild even better brains than we had before, there might be a few wonky bits here and there, but on the whole it will be better.

1 Like

Thank you for your words of encouragement. I am now working hard on becoming ambidextrous , using both right and left hands since I lost the use of my dominant right hand when I had a stroke. It is a challenge! Good to hear from you. Lilian

1 Like

Hi I am new to the forum and would like to introduce myself. My name is Beryl and I am a retired accountant of 64 years and I live Alone. 6 months ago my life changed completely when I had a stroke. I was at home on my own and had been experiencing a drunken feeling for 24 hours. I suddenly started to feel most odd and tried 111 for help. After an hour of no response I rang 999. An hour later help arrived and they felt it was probably a stroke. After 4 hours in a&e I was sent for tests and after a further 4 hours I was admitted to a ward. When I woke the following morning I realised that I could not use my left hand, speech was hard work and I was exhausted Following an MRI I was told I had a clot on the tight side of my brain.
I was fit and healthy prior to the stroke and used to walk 10000 steps a day with my cocker spaniel .
My recovery has been steady until recently. I have regained the use of my left hand and face/ mouth. I know how lucky I am compared with many stroke survivors but I really struggle with the fatigue. I feel like this is not improving and it makes life such hard work. Some days I struggle to walk my dog and just wish I could curl up and sleep until I was better. Sorry if I sound miserable but it was such a shock and there seems to be no timescale for improvement

1 Like

Hey Beryl @Brhodes001 welcome to the forum. So sorry to hear you’ve had a stroke but great to hear your rehabilitation is going well, apart from the fatigue.

It’s ok to feel a little down at times but unfortunately we can’t turn back the clock but have to continue to move forward and strive to accept the ‘new’ version of ourselves. Try to plan rest periods into your daily routine to prevent doing too much and wearing your body and brain out to ward off the fatigue before it hits. On days when your feeling good, it’s so easy to overdo things but your brain has been injured and needs a rest.

I was told to rest the brain I had to spend time doing nothing, no reading, no TV, absolutely nothing, to accomplish this I lie quietly, close my eyes and focus on my breathing for 10 minutes.

Wishing you all the very best, we’re here if you need to chat, take care.

2 Likes

Dear Beryl. Welcome to the Forum. I am sorry to hear about your stroke. You sound as if you had a hard time but are making good progress. Tiredness is a real problem for all of us. There seems to be no magic cure but we learn to find our own way to manage it. Your doctor may help. Best wishes Lilian

Hi everyone. I recently turned 21 and I had a dissection so lost my speech, swallow (which has thankfully come back) and paralysed on my right side. Yesterday I walked independently which felt incredible. Does anyone have tips or advice? How will I be in the future?

Hello Anna (@annashort), welcome to the forum, and sorry to hear of the stroke. I hope we can be of help during your recovery period. My advice would be to do a little often. For the first six months your brain is going through repair hyperdrive, so now is the time to take advantage of that, but try not to overdo it. The brain also requires rest as much as it needs to be exercised. How things will turn out in the future is subjective to each survivor, as each stroke is different because our brains are all different. This also equates to recovery time, and the phrase, “how long is a piece of string?” is a useful measurement for determining recovery. However, daily repetition is key to getting the dormant neurones back online. Listen to your mind and body, and try to rest before it gets exhausted to avoid the boom-bust cycle which is counterproductive to recovery. Drop anchor when you need to, and work out a strategy for managing anxiety, as that too will make progress harder. For a period I found myself rehabilitating my anxiety rather than rehabilitating the stroke symptoms which is also counterproductive.

2 Likes

Hi Anna @annashort, so sorry to hear you’ve had a stroke but great news about walking independently yesterday, hopefully an indication of a rapid rehabilitation ahead for you.

Stay strong, stay determined, push yourself but be aware of overdoing it, as Rups @Rups mentions , rest your mind and body before it gets exhausted.

We’re here if you need to chat and welcome to the forum.

1 Like

That is so true ‘strive to accept the ‘new’ version of ourselves’ that Mahoney has mentioned Beryl. There will always be someone on this forum to help out or have a chat if you get a bit disheartened with anything. Best wishes, John

Hi Beryl having a stroke is a shock this site is great for giving advice encouragement tips it can be a slow process take one step at a time.
The Brian and body need rest in time you will see results remember the saying slow and steady wins the race you have to go at the pace of a tortoise instead of a hare all the best gillian

Thanks Gillian. I am trying to be patient and am starting to manage my time better. Just hope my improvement continues