Hi to everyone is on this site.
Excuse my basic use of English please. A bit about myself and a mini timeline before my event(s). I’m 60 years old and an ex sporty type person. But if I’m honest I was also an ex heavy social drinker.
Following a really bad chest infection I’ve been in AF (on Apixaban) for about 6 years now. In just over a year, in 18 months I’ve gone from an Abscess in my chest (major op) to a Prostate bleeding issue. The scan showed a majorly destroyed kidney with clots. Venal and arterial investigations on my kidneys showed other problems. My vein in my right thigh was “insufficient”. An important Sub plot – I’ve had Leg probs ie compartment syndrome forever but in the last year it’s got worse and worse. I’ve gone from been able to walk briskly (albeit in pain) for 5 miles or riding my stationary bike for 10 miles a day to struggling to walk at all. I just knew there was a deeper problem going on. My lower legs were pumped solid 24/7. So, I had the first TIA in Oct. mainly my balance was affected, and my left side was pins and needly same as It felt I had been slapped in the mouth. I felt ok so I did go back to work after 3 days.8 weeks later I had a full stroke. I could Barely speak at all, mouth dropped. As you all know it’s terrifying.
Anyway, here I am. I struggle to sleep for more than 3 hours a night, just Listening to my new friend Tinnitus (Aspirin doesn’t help apparently) for company in my brain thinking yes, you’re going be ok, just another hurdle you’ve got to get over. The next second I’m thinking that’s it mate. Game over. Some very negative dark thoughts most of the time, then I join this excellent group read the posts and I’m totally humbled by it. I know my problems are practically nil compared with others.
So now my Left upper arm still pulses/twitches on its own, pins n needles in my left hand much the same as it did on the day of the TIA. My consultant has told me its post stroke activity. Fine, I accept that. I have on and stroke fatigue. Where 1 minute I think that I’m thinking clearly then the next I just I’m not on this planet. Trying to deal with my Aphasia, I try to sing or read out loudly and do the many exercises I’ve found out about (Dr Google on Youtube has been good). My face still feels like it’s been slapped and probably looks like it too. I try to keep a sense of humour about things, but I can’t help thinking for 2 thirds of my life I’ve been drunk and for the final third of it I just sound drunk. Great.
Exercise – trained really hard 12 hours before both events. Coincidence? Even yesterday I did a few sets of sit-ups and later I thought that I was going into stroke scenario again. The docs told me it would be good to exercise moderately as advice I have read on here it says to. Surely, I can’t be doing myself more harm can I? A nice subplot is that since my night in hospital and the 300mg of aspirin my legs don’t feel anywhere near as painful. Do the clots actually sort of “flush” away?
Before I had the TIA a consultant told me the kidney clots were probably caused by a reaction to the vaccine, then following the stroke another consultant told me, it was most likely caused by the AF and that I’ve been “unlucky”.
Any Advice on taking Energy drinks/supplements? Should I resist? I had an energy pill yesterday and was buzzing, but once the sugar high wore off I felt terrible. I haven’t taken anything since and I was hoping someone could share their experiences / advice with me.
Sleep, tried everything herbal and legal. I can’t see my docs giving me anything, but I will be asking. I do not want to go back to world of alcohol induced sleep.
I need a dentist (long story), I’m thinking that with my mouth full of lead and my aching jaw as regards my speech recovery. I just know that the whole issue of dentistry following a stroke whilst in AF is going to be another whole saga. Again, anyone had an experience that they wish to share?
If this is my life now I will have to get on with it. My very fit 80-year mother nursed my father after 3 strokes and 3 heart attacks. I’m not putting her or my good lady wife through that as she’s just lost her mother and her family have imploded and basically, it’s all Fubar. I’m learning as I go along as already, I know that I have some good and some very bad days. But to think I’m possibly jobless and then homeless soon is terrifying. Anway, that’s currently me. Thankyou for taking time to read this and I wish everybody who is on their own journey or part of someone elses the best luck anyone could possibly have.