There’s a guy in my aphasia group who is the same as your husband and the most he can say is ba ba ba. He uses a tablet to communicate with when he needs to, otherwise he’s happy to let his wife say it all for him
Thank you for your reply,
he tries to type but can’t always find the first letter of the word he wants to write. This is what causes his frustration, try to grasp what he’s wants to say often leads him to give up. We try different ways and hopefully something will work.
The documentary premiered at the BFI last night, as you may have seen if you follow the Stroke Association on any of our social media channels.
You can now watch it on our website: When the Words Away Went | Stroke Association
It’s also available on Channel 4 OnDemand.
Thank you for the reminder @AshleyTH I had forgotten I will watch later today.
Have a great weekend.
I’m always worried about that when I’m in the office. I sometimes have an awkward moment when a bit of spit flies out and hits a colleague’s computer screen and we both ignore it . It does tend to completely put me off what I was talking about!
I suffered from aphasia and was helped by a NHS speech therapist when out of hospital. They help you understand what has happened and then give you good options / ideas to help you move forward. It can take a long time in some cases but it really is worth persevering as any improvement feels like a big positive step.
I watched this last night. I was a blubbering mess at the end. So powerful & moving. The wedding vows got me but also the children & particularly the one who said he didn’t love his mum any more. All because she was like a different petson to him. Heart breaking
I’ve watched it, 3 very inspiring people all so brave in their own different ways, it was wonderful to see the children supporting their parents
Thanks again @AshleyTH for pointing it out to us.
Hi everyone it’s been a while since I was last here.
I’ve seen the new documentary about aphasia and wish I had come across it right after my stroke.
It has taken me over 2 years since my stroke in September 2020 to finally admit that I have aphasia. The reason for the delay is because I was embarrassed to admit, following the lack of understanding and support from my family. My father thought I was mentally disabled and tried to keep me hidden away from the public. Whenever I was out in public with my sister and I tried communicate she would let people to ignore me.
When I had aphasia post stroke I also lost my British accent which I acquired when I came to study in the UK back in 1989. The accent was a protective shield for me to allow me to blend in.
I’m been working on my aphasia all this time by remembering the alphabet, grammar, spelling and number by using kids school books, reading out loud, and agreeing to be interviewed at various social media platforms.
I believe the fact that I can read or speak other languages has helped me a lot with my aphasia. Early on in my recovery I had to switch between English and Kiswahili with my partner and my cousin. It was exhausting at times but I kept going until it became easier.
Whenever my partner and I come across a foreign film or series on TV we watch it with subtitles and this helps me with reading and also triggers my love of languages.
As one person said in the thread you have to keep practicing every day, which I try to talk to strangers as much as I can here in Edinburgh.
@joy.alliy long time since we heard from you. Welcome back.
Thank you for sharing hope it helps others.
Keep going on wards and upwards you’ll get there.
Sending hugs loraine x
Thank you for sharing @joy.alliy and welcome back.
My eyebrows are so high you’d think I caterpillars on the ceiling and my eyes are watering! So glad you are away from those who were stunting your recovery through their own ignorance (as in lack of knowledge). Sound like you are doing well in your recovery, it is indeed a matter of practice, practice, practice. My family have certainly been educated is strokes as I used to read these posts out loud a lot in the beginning Everything was read out loud, even recipes
Thank you for sharing
Thank you for sharing your story @joy.alliy it makes me a little sad that you felt you had to hide your aphasia away. Lack of understanding by those around us makes things more difficult.
Good to hear you’ve found azway through though.
It’s very sad how people who are highly educated can be so ignorant about medical matters. Even though my partner who is Scottish tried to make them understand what it required from them in order for my recovery to go well.